Nemechek Protocol, Can We Really Believe It's Safe?

[danielmoore]

I've come across the Nemechek Protocol and I really believe more research is required before anyone can say with assurity it is a safe solution.

I also find Patrick Nemechek's evidently false claims and history a concerning matter.
As an example, he claims Small Intestine Bacterial Overgrowth (SIBO) is the cause of autism. That is obviously false considering there's autistic people who have never suffered SIBO and there's people who suffer SIBO who are not autistic.

Studies have been conducted to see if there's a relationship between SIBO and autism. Results show autistic people are more likely to suffer from SIBO but it cannot be generalised across the whole spectrum.

It's concerning that he prescribes antibiotics like Rifixamin when we know antibiotics actually cause SIBO. His protocol doesn't address the cause of SIBO which is why it persistently returns, to cure SIBO you need to know and address the cause because as long as the cause is still there, SIBO will be caused again.

There has been no tests done on variables, of how individual variables can influence the results. Like what if the protocol was exercised on someone diabetic? We know there's certain substances people who consume substances like insulin or any other medication can't consume without harming themselves.
With no tests or research on variables there's no knowing who it can be safely applied to that parents must take the risk of harming their children.

It's also concerning during his career he's been publicly caught in a court case doing plagiarism when working with people with HIV and that his treatment for people with HIV actually resulted in death, the people who consumed it began to live "normal" stable lives but it didn't take long before consumption made them suddenly and strangely die.

I now warn anyone who is thinking of using the Nemechek Protocol, know that trying to cure an autistic person increases the probability of suicide. Studies worldwide show autistic people are 10x more likely than the general population to die by suicide by not being accepted for who they are, by parents exercising interventions to change their child's identity.

"When a parent says "I wish my child did not have autism." What they are actually saying is "I wish the autistic child I have did not exist, I wish I had another (nonautistic) child instead."
This is what we hear when you mourn over our existence, this is what we hear when you pray for a cure and speak your fondest hopes and dreams for us, this is what we know; that your greatest wish is that one day we will cease to be, and strangers you can love will move in behind our faces."

"I had virtually no socially-shared nor consciously, intentionally expressed, personhood beyond this performance of a non-autistic 'normality' with which I had neither comprehension, connection, nor identification. This disconnected constructed facade was accepted by the world around me when my true and connected self was not. Each spoonful of its acceptance was a shovel full of dirt on the coffin in which my real self was being buried alive."

Autistic people are not a disease as Patrick Nemechek describes us, we have different needs and different gifts. If you agree disabled people are "abnormal" it becomes necessary to define the characteristics, the behaviour, appearance, and achievement of the condition "normal". However, that is not possible as it is beyond the lense of science as it will differ across cultures.
They cannot be normality without the existence of abnormality, since science cannot define normality, this idea of autistic people having broken brains has no valid scientific basis, you cannot fix what is not broken.

Whether you like it or not, the human race cannot survive without us which is why the genes are still in the gene pool. No diversity (normality) = no resilience among the human race.

[CK1988]

@danielmoore I've started my daughter on Nemechek. She is 2.8 and non verbal, no diagnosis and not sure if she would meet full criteria for ASD but there are some very minor traits...my main concern is her lack of communication.
Anyway we are on NP for 4 weeks now and I see positive changes, she is babbling so much more now and it feels like she is close to speaking, she has also started pointing and does some imitating (mostly from the tv). It's still early days and sometimes its a pain trying to get the supplements into her but for the first time in a long while I feel positive about the future and don't feel like I have a black cloud hanging over me all the time worrying that I'll never be able to converse with my only child.

Just a quick note
"When a parent says "I wish my child did not have autism." What they are actually saying is "I wish the autistic child I have did not exist, I wish I had another (nonautistic) child instead."

I disagree with this statement, while my daughter has no diagnosis and I don't know if she would get one, I am doing NP simply to increase her communication and bring her from non verbal to verbal, its the same reason I pay for private SLT for her. My daughter is a bundle of joy, she incredible and all I want to do is to get her talking. (Maybe this is selfish of me but I will leave no stone unturned when it comes to ways to improve my daughters life).