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AIBU?

Folic acid, feel like I'm dying.

26 replies

Happy20 · 30/06/2020 15:06

I really am looking for anyone else that may have experienced what I'm going through with folic acid.

I've been taking it for nearly a year now and all was fine up until about 4 months ago (just as my periods stopped, wether a coincidence or not?)
When taking them suddenly made me feel really awful.
To begin with I didn't believe it could be due to the folic acid so cut everything and then reintroduced stuff singularly and gradually but as soon as I did over two days of folic acid I got the same symptoms.

It doesn't matter when I take them (morning or night) but they would make me feel like my insides were shivering, I would feel a bit confused, get awful tummy aches, feel dizzy and if taken in the evening I would wake up in the middle of the night with all these symptoms plus a hot flush/temperature feeling and this awful feeling of impending doom.

I've told my Doctor who seems to think it's impossible to be the folic acid but hand on heart I've cut everything and tested it twice now and both times the same thing has happened.

I'm taking 500mg once a day, so not even that high a dose and taking it with food.

Please tell me this has happened to other people and I'm not going mad!
Also some anecdotal evidence of others would be good to go armed with for my next Doctors appointment.

OP posts:
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Arealnumber · 24/07/2020 15:46

@MrsNoah2020

You're probably part of the 20% of the population who have the MTHFR gene and cannot process folic acid safely. Folic acid is synthetic. You need the natural form - folate. It's more complicated than that though. You need to see a really good nutritionist. Dr Ben Lynch (USA) & Caroline Ledowsky (Australia) are the world authorities on MTHFR. You can be tested for it. Folic acid is actually really quite controversial - it has resale quite damaging effects for a significant part of the population. Incredible we hear so little about it in UK hey!

That''ll be because most of what Lynch & co say is absolute bollocks, made up to peddle cures for imaginary diseases caused by 'dirty genes' Hmm

However, it is true that not everyone responds well to high doses of folic acid. Talk to your GP, OP. Do you actually need it? Could you increase your dietary intake of folate instead?

Do not stop taking it if it has been prescribed without talking to a doctor first, though.

MrsNoah2020 I've just seen your response here. I've never previously seen anyone attempt to counteract the findings and practices within the growing field of epigenetics. You seem quite passionate about it too as though you perceive it as quackery! Are you a General Practitioner yourself by any chance? I'm really, genuinely interested in why/how you hold this point of view. Could you possibly point me in the direction of anything that I could read on this? I honestly had no idea that this field had any counteracting voices around. Many thanks if you could spare the time to do so - I'd really appreciate it.
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