Hi I’m posting for traffic and to see if anyone has some positive or even not positives stories about this to help me feel less in the dark.
For over a year I’ve been going back and forth to my GP with episodes of DE Ja Vu type feeling that was waking me up in the night and then giving me periods of absences throughout the day. It was originally diagnosed as migraines without the headache and then they were saying anxiety. I was adamant that I don’t have anxiety and pushed for a referral to a neurologist the GP did refer me but made it clear he thought I was over reacting even putting in the referral that I had self diagnosed using google which wasn’t true.
The neurologist agreed with me that it may be some kind of seizure and sent me for an MRI and eeg this was back in May.
In the mean time I’ve had 2 tonic clinic seizures one at work where they phoned an ambulance and sent me to A&E.
So last Wednesday I get a call at work from the neurology department saying they needed to see me urgently and I needed to go in the same day. They tell me I’ve got 2 cysts and swelling on my temporal lobe and I need an urgent referral to a neuro surgeon. I ask questions like do I need to be worried? Could it be something sinister and she told me that’s for the neuro surgeon to decide. The same day the MRI department called me and said they need to see me urgently for another MRI with contrast.
The next day the neuro surgeons receptionist rings me and says he needs to see me urgently on Tuesday they’ve slotted me in between patients and I absolutely must not miss this appointment.
I have absolutely worked myself into a frenzy I have no idea what is going on. I’m to afraid to google becaus I know exactly what that’s going to say.
Anybody been through similar? Anybody work in neurology that can tell me another reason it could be urgent other than the dreaded? Literally any advice will be appreciated
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Posting for traffic cysts and swelling in temporal lobe
16 replies
Nefney14 · 07/10/2018 06:27
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