Kew
You asked if parents of children with significant additional challenges, who aren't adopted, feel the same.
YES, all the time. DS1 has high functioning ASD and working out how he feels, why he is stressed and what is going on with him is a daily struggle and mostly complete guess work.
I say he is high functioning, he got that diagnosis as he is very advanced verbally, however emotionally he is low functioning, behind his ASD peers, and has no idea of what is happening inside his own head.
I feel like I am failing him all the time, I get so stressed about behaviours he can't help but that I can't seem to help him modify and that he needs to modify to function in the world.
I am utterly failing to get him the support he needs and am so scared about secondary school and how he will, or rather won't, cope.
I beat myself up for finding him such hard work, all the time, when he is a lovely boy, but just so intense.
Maybe someone else would be more patient, fight better, have more money to buy in support the state just won't provide. Maybe someone else wouldn't have all the issues with their own childhood that I have and would therefore be more patient and less stressed.
And for those people who say 'it's normal, they all do that' or 'we all feel like that'
I'm sorry but that is just not true. It's the depth and breadth of the issues. It's the constantness of it.
It's the feeling that you are failing every day when you can't even teach your child to remember to wash their own hands or not to walk in front of moving cars.
I understand why other parents say 'they all do that' their child may do 1 or 2 of the things my child does, but unless their child actually has significant special needs, not to the same degree and their child has two of the issues, my child has loads, as well as the core 'ASD' issues. Which are overwhelming and affect him, his sibling and us as parents on every level all the time.
Sometimes you forget how differently you parent and how different your life is until you are thrust into a situation where you see other parents doing things so differently.
Sorry, that turned into a bit of a rant but in answer to your question and on behalf of the special needs parents you see who seem to be managing. We are not. At all. Many of us are on anti depressants and still not coping. We just form little cabals of SEN parents and talk to other people who get where we are coming from.
Someone sent me a text the other day, I had helped her with something saying how organised I was!!! I just replied, honestly, saying I was amazed I had managed to give that impression.