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Adjustments for disabled DS?

17 replies

sharkirasharkira · 17/06/2018 19:23

I realise this is going to be a difficult thing to ask as no one personally knows my DS and his quirks, but I was wondering if anyone can think of any other adjustments I might need to make to our day to ensure that everyone has as good a day as possible! Fwiw he is severely autistic, he'll be 12 at the time of the wedding.

Thoughts:

I really want to have candles/balloons as decorations at the venue but DS has a worrying love of fire so we're going to have to have those LED candles instead.

He also loves balloons and will probably try and steal any that arent tied down so I'm thinking of making a small bunch just for him that I'll give him as he walks in to distract him from all the others!

Flowers, he quite likes ripping the petals off (for some reason) so I think we'll have to have artificial ones to stop him ruining them. Ditto paper stuff, I want to make some paper hearts/bunting/pinwheels etc but will have to laminate them to stop him tearing them.

He will have his tablet/headphones etc to use as that is generally his favourite thing and keeps him calm and happy. I've shown him a picture of my dress and when I have some I'll do the same with the venue and other stuff so he'll have an idea of what to expect on the day and build up to it.

I can't think of anything else that we might have to do differently, anyone have any ideas or tips?

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Knittedfairies · 17/06/2018 19:29

Will your son have someone he knows well on hand?

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Sirzy · 17/06/2018 19:31

Someone he knows well to support him.

A visual timetable of the days events.

A breakaway room where he can escape of all gets too much.

“Safe” food?

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BackforGood · 17/06/2018 19:32

Would he be able to watch some video clips of weddings beforehand ? It's quite an odd concept for a child without autism, and it does sound like you are going all out on the decorations, so it might help if he had an idea visually of what was happening ?

Also agree with Knittedfairies about there being someone there who is specifically tasked with supporting him / allowing him to withdraw if he gets overwhelmed.

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Wolfiefan · 17/06/2018 19:33

Can he see the room before the wedding? It'll look very different decorated. Will there be noise? Does that upset him? Will he know the people there?

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GreenTulips · 17/06/2018 19:33

Take him to the venue to ask questions
Visual time table helps
Can he have a safe spot to go too? So you have a room he can duck into? Can they show him the room.

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NotUmbongoUnchained · 17/06/2018 19:35

Will the venue be decorated the night before? If yes, could you take him there just you and him to explore it before it’s filled with people?

And a quiet area to escape to was always essential for my brother.

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Bombardier25966 · 17/06/2018 19:41

Visit the venue, a picture doesn't give perspective. It would leave me with more questions than answers.

Will he not still try to get the tied down balloons, do you really need them? I'd try to balance how much you want them with how likely it is to cause distress.

I do the flower ripping thing (sorry!). If it helps to understand, it can be very calming, it's something to focus on and block out stimuli that might be overwhelming.

Are there bedrooms at the venue? I agree on a breakout room, and somewhere far enough away to be quiet.

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Buzzing54 · 17/06/2018 19:42

A social story if he has that level of understanding, explaining the likely sequence of events and anything unusual like only eating the favour at his own place setting, being served dinner a course at a time by waiting staff, (unless he's used to this)

Will you have disco lights and music in the evening? Could be another trigger for some.

His own balloons sound like a lovely idea

Do you know what he will be wearing? Let him have a few chances at trying it on to discover any uncomfortable corners or fabrics if it's different to his normal clothes

Sorry if these seem obvious or not relevant!

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sharkirasharkira · 17/06/2018 19:54

Some great ideas here, thank you!

Venue is very far from where he lives so there won't be any opportunity to visit in advance unfortunately. He isn't capable of asking any questions.

We will be having buffet and BBQ type food, which he is very familiar with as we have them regularly so this shouldn't be a problem for him. Sometimes stealing other people's drinks is a problem but I'll try to make sure we have a special stash just for him so he won't need to take anyone else's.

I don't have to have balloons but I think the difficulties come when he wants one but can't have it. I think if he has his own he will be fine.

We will have disco and lights but he loves these, and dancing so that will probably be his favourite part of the day! We are going to try and have the ceremony late afternoon then go straight into the meal and party to make the day not quite so long.

He will have my parents there but I might ask his respite worker to come too, otherwise my parents might have to miss parts of the ceremony, etc to take him out if necessary. It will mostly be family but he is quite good with new people anyway.

He loves suits, bow ties and dressing up smart so he's very keen on that bit! He's already specified that he wants a 'yellow suit' when given the choice Grin

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IlikemyTeahot · 17/06/2018 20:19

Where is your venue, is it outdoors?
(in a marquee etc)
What about a tee/pee tent just for him with some of his comfort items inside and decorated with things he can actually pull apart safely and little battery powered lamp pillow blanket etc

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sharkirasharkira · 17/06/2018 22:57

It is partially outdoors, the ceremony will sort of be but the reception is inside.

We do have a little pop up sensory tent that is blacked out inside so he can use UV lights and such, will have plenty of things that we can put in it.

I'm not sure if it will be possible but I would really like to hire one of those 'disco domes' - basically a grown up, blacked out bouncy castle with music and disco lights inside. DS would love that, he'd probably lie inside the whole night but not sure if there will be space for it.

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Buzzing54 · 18/06/2018 15:42

That all sounds lovely, the respite worker sounds like a good idea to free your parents up a bit

Wishing you all a wonderful day!

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SpecialchildSupermum · 08/07/2018 17:40

Hi I have an ds the same age with asd and other related diagnosis. Imo weddings are extremely long. Does he need to attend the whole thing? Can you pick what he will enjoy/cope with and have his respite worker take him out of the situation for breaks. You said he likes dressing up - so he can look great at the ceromony. Ensure you get the photographer to get him in photos early on in case he gets fed up waiting around. Get a few bunches of cheap flowers for him to pull apart and a carrier bag to clear up or let him use the petals as confetti. Take easy snacky food and drinks for him to enjoy whilst you mingle with guests. Soft clothes for later. Make sure all devices are fully charged and take chargers with you. Yes to a tent kitted with blanket to lay on and sensory toys. From how you've described your ds - he may get overloaded which can lead to meltdown which you don't want on your wedding day. Make it as easy for him as possible - don't insist he is involved with everything and have planned back up. If he's happy - you'll have a super day and memorable for all the right reasons. X

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sharkirasharkira · 10/07/2018 14:37

We are planning on having the ceremony at 5pm and then straight into the meal/evening do to try and minimise waiting around. Minimal time for photos. Will get him his own flowers though, I think that will go down well with him!

One of my main worries is what will happen during the ceremony/vows. He might insist on coming up there with me and get upset/scream when he isn't allowed to which will disturb everyone and be quite disruptive. If his respite worker can come then he can take him out but if not then one of my parents will have to take him out and end up missing bits of it Sad

No way to know until the day I suppose though, he might be fine!

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CaffeineAndCrochet · 15/07/2018 08:37

DD will be 9 when I get married and when it comes to vows, etc, if she wants to sit with me I'll probably let her. It's going to be a big strange day for her.

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Dovesfly · 15/07/2018 08:56

Definitely have his respite worker or a carer if you can.

I'm having a carer for my daughter.

Does it matter if he comes up to the front? I'm fully prepared for my daughter to waltz to the front ( she calls it our wedding).

In the ceremony could you have a basket of twiddles, sensory balls etc for him to play with? Or music with headphones?

I'd keep showing photographs and videos of the venue & a visual timetable of the day..., from get up to getting dressed, transport etc

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Halfblindbunny · 15/07/2018 09:00

I dont know enough about autism to help but just wanted to say he can absolutely stand with you at the front if you feel that will help and you want him to.

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