Here are some suggested organisations that offer expert advice on SN.
new here(9 Posts)
Hi I'm new on here but have read some of the conversations and it looks like lots of you have children with ASD. My boys are aged 4 and 5 and my youngest was diagnosed with ASD when he was 2 and a half. My elder boy seems to be fine.
I've been feeling desperately low today and wondered if anyone ever feels like this. My ds is in an excellent autism specific unit attached to a mainstream school.His proposed statement came through today and reading it was like getting dx all over again. He sounds so severe (he has SLD as well as autism) and it is just breaking my heart altho I know I should be used to it by now. I am also a part time primary teacher and the pressure is building at work at the mo and I can barely cope but am reluctant to give job up as it has always been like respite but so many competing demands are taking their toll and it's all doing my head in
Thanks so much for listening
Hi elun. Welcome to MN. I'm sure you'll find the support on here that you need. Nice to hear from you.
Hi Elun, welcome to mumsnet
My dd (6 yrs) doesn't have an asd dx but does have a pragmatic language disorder.
I think all of us on this board can sympathise and understand the way you feel. I always describe life with my dd as an emotional rollercoaster as one minute I am fine and the next really down.
The statementing, dla and any professional reports I do find hard and quite often shed a tear or 2 as it is down in black and white what difficulties dd has. Quite often with statementing they paint the worst case scenario as statements are so hard to get. I was actually talking to dd's teacher today about how hard I found stamementing (it was yrs ago), felt like they were pulling dd apart. I know now they had to do it but still doesn't make things any easier
Don't be so hard on yourself though. You have a lot on your plate right now!
Welcome to the SN board, Elun.
I have 2 boys with ASD - 5yrs old and 2yrs old. I agree with BH's idea of it being like a rollercoaster. The good days are great but even little things can leave you feeling very down.
Hi Elun - good that you can share - the summer term's always dire at school I think - worse than the run-up to Christmas in many ways.
The statement is a big downer - we spend so long concentrating on what our children can't do we forget to cheer them on when they can do something.
(She says, having just put her bare foot on something very sticky under the dining room table :0 )
Hi Elun - welcome to the very lovely world of MN, SN board! My ds has Aspergers/ADHD and agree with Bloss that it can be a rollercoaster ride.
I love the expression "some days your the pigeon, some days your the statue" - it seems to sum it up perfectly.
I haven't been through the statementing process (long story that I won't bore you with) but certainly sympathise with you. The smallest things can send me plummeting with despair, yet as MotherEve says, we should remember to celebrate our children too (ds got Learner of the Month in this mornings assembly - was I proud or what? - for achieving his "personal targets"), yet there I was again this evening, downhearted and miserable).
Is it possible for you to take some "me" time out? (???what's that? ). Take care. x
Welcome elun, can completely empathise with seeing things in black and white, I also think it's important to remember that we see our own children in their most secure environment at home with familiar people, so their behaviours are always more extreme with the stresses of a school day etc. Hope you are feeling more positive soon.
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