I feel a tiny bit bad posting here, though SN has helped me a lot in the last 18 mo,
My dd2 (who is 5y10m) has Perthes disease, a (thankfully) self limiting hip problem. She doesn't feel pain (often) but (though capable of all of this) is not allowed to hop, skip, jump, run, dance, walk for more than 5 mins at a go - in every hour.
We had hoped, last week, that she woudl be given the all clear.
But sadly she has been diagnosed with slow Perthes, which means we are looking at another year of her being wheelchair bound at school, no activities, buggy for outings, etc etc etc ..........
She's really good about it ...most of the time. But her desire to jump and dance takes over a lot.
She knows she is lucky that she won't always be in a wheelchair. She is very appreciative of the time she can walk. She knows that if she doesn't comply, she needs to have an operation.
I am weeping at the thought of it, though! I know most of you mums on SN have needs that will never go away (thinking of Riven - one of the ways my dd got used to her chair was that she was so happy looking at MN pics of her dd - she wants to be "big and happy" like Riven's dd - made me cry even more!!)
My dd tries so hard!! Is there any way you can think of to make it easier for her to look at a wheelchair for another year in a positive way? I know I am BU here, as any of you with a mobility issue kid is facing much more thn we are. But I don't knwo where else to ask, when my 5yo is sitting on my knee sobbing that she can't do gym or play out in the playground .....
And I have so much respect for you all. My dd is temporarily (3 years we reckon) disabled. How do you cope - I don't know. But You are very much in my thoughts!!!
Please or to access all these features
Please
or
to access all these features
Here are some suggested organisations that offer expert advice on special needs.
SN children
I'm struggling with dd2 - I know you ladies have it much harder than I do!!!
2 replies
weegiemum · 07/09/2009 14:01
OP posts:
Please create an account
To comment on this thread you need to create a Mumsnet account.