diagnosis of 9q34.3 deletion syndrome

[Kaz01]

i have joined this site to see if can get support, i am also a member of unique for rare chromosome disorders, i would like to talk to other parents who have children with rare chromosome disorders.

[SJisontheway]

Hi Kaz, My DD has a deletion on chromosome 15 - Angelman Syndrome. I believe it's one of the more common chromosome disorder - but still quite rare. She's just gone three and is great!

[margobambino]

Just bumping for you. There may be more people around at night Wellcome to Mumsnet by the way.

[margobambino]

Ooops someone already has written

[trace2]

hi found a facebook page dont know where you know about it

www.facebook.com/group.php?gid=79429162091