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Here some suggested organisations that offer expert advice on SN.

diagnosis of 9q34.3 deletion syndrome

(6 Posts)
Kaz01 Sun 16-Aug-09 16:33:50

i have joined this site to see if can get support, i am also a member of unique for rare chromosome disorders, i would like to talk to other parents who have children with rare chromosome disorders.

SJisontheway Sun 16-Aug-09 22:18:06

Hi Kaz, My DD has a deletion on chromosome 15 - Angelman Syndrome. I believe it's one of the more common chromosome disorder - but still quite rare. She's just gone three and is great!

margobambino Sun 16-Aug-09 22:19:17

Just bumping for you. There may be more people around at night Wellcome to Mumsnet by the way.

margobambino Sun 16-Aug-09 22:19:56

Ooops someone already has written

PipinJo Sun 16-Aug-09 23:03:16

Message withdrawn at poster's request.

trace2 Mon 17-Aug-09 09:04:27

hi found a facebook page dont know where you know about it

www.facebook.com/group.php?gid=79429162091

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