Vacant & lip chewing??

[lucymum2four]

I posted thread about my concerns with my dd about her slow development & cross eyes
a few weeks ago. Have a appt 11 aug with peads.

just wanted to ask should i bring up that.
sometimes she looks vacant and looks asthough she is chewing on something. doesnt respond to you when talking to her,just stares. when usually she would smile. it last's 30sec or so then she'll just carry on playing.
or does that sound silly??

and another thing not sure to mention.
she doesnt sleep well lately.
has a high pitched cry and goes rigid and doesnt want to be held,happens in day too but mainly of a night.?

does that even make sense to anyone? just feel like im rambling when trying to explain.

Thanks

[lou031205]

The first scenario sounds like DD when she has an absence seizure. Sorry I can't say something more positive.

[lucymum2four]

so deffinatly should bring it up at appt then.
should i be writing all this down? i really dont want to forget to tell them anything that concerns me..

[2shoes]

does sound like what dd does when having a seizure

[lou031205]

Yes, definitely write it down. If you can video it, that will be really helpful to the paed.

[BriocheDoree]

Can't comment on seizures, but would say DEFINITELY write everything down and discuss everything. You never know what little snippet might be useful!

[lucymum2four]

thanks..
nice for people to listen dh doesnt want to here any of this,burying head i think...but yet my mil will repeat things i have told dh. Funny that!!!

[SJisontheway]

Hi Lucy - if you get a chance try and record it. If you have a camera phone make a video clip. Paed should have a good idea from watching clip - much clearer than a description. It could possibly be an absence, although I'm sure thete are other explainations. Best of luck with your appointment

[lucymum2four]

will definitely be recording her.

thank you all x

[studentmummy]

Hi Lucy - asked my mother-in-law about this one and she suggested petit mal (form of little tiny painless seizures) often with no other complications which result in very short lapses in concentration. Not as serious as it sounds and often only becomes apparent when children reach school age and attention wanders in a lesson!! You might want to google this one there is a checklist.

Good luck with appointment!!

[studentmummy]

p.s. mother in law is GP in case you were wondering and petit mal translates as 'little illness' now more widely known as absence seizures.

[lucymum2four]

thanks student mummy.

[Lauree]

Hi Lucy,
don't think you are overreacting, you know your dd best, and you will spot anything unusual.

film it on your phone if you can, that's an excellent idea, it's practically impossible to describe these episodes to the paeds properly.

I really hope its nothing to worry about, but it does sound similar to my son, and he had absences ( momentary vacancies) when he was little, also little startle jerks like babies have but he still has them and he's five. These absences and startles, were a both kind of epileptic seizures, but they didn't seem to bother my son, and were only momentary. The sharp cry and then go rigid might also be a kind of seizure, do you think? Have a look on the epilepsy action website, they describe all the different kinds of seizures, and what to do.

DS had an EEG about a year ago, and they found significant unusual brain activity, (epilepsy) And then, after Christmas this year he had some big seizures. All controlled by medication now, thank goodness.

Defintitely keep a diary, it's so easy to forget. And do mention it at your appointment. If you are worried about dd's development, ask the doctor if they can refer you for extra help, eg speach therapy, physio etc. Or if dd is very young, portage were brilliant for my son.

Don't panic, but do get informed so you know what to do just incase she has a fit x