My dd is 3 and has cerebral palsy but has just started walking small distances unaided. She's very wobbly and tires quickly. She mainly uses a kaye walker outdoors and her wheelchair if we have to go further than about 100 metres.
My mum is normally good with dd but always encourages her a bit too much iyswim, doesn't accept that she gets tired as well. She took both my dd's away camping for the night in her VW camper van, when it came to picking them up my step-dad started fussing about how much space the wheelchair takes up . Yes, we know but fgs she uses a wheelchair, not taking it is not an option. They didn't take her kaye walker and I gave in on that one as it was going to cause a fuss.
When they got back today dd was incredibly tearful and clingy. As usual mum gave them a fun packed weekend but they did way too much and dd got beyond exhausted. She just doesn't get it that getting her to do loads and loads of walking does not make her 'better' - it just makes her cranky and achey and unable to walk at all the next day.
When it came to bedtime my lovely little dd was just sobbing and sobbing and after about 30 mins out came this garbled sentence about her being so so tired and nanny wouldn't let her sit in her wheelchair . I don't know if she literally wouldn't let her or more likely that dd didn't feel able to ask as my mum pushes her so much to walk all the time . I just feel desperately sad for my little love and also despondant that even my mum who sees more of dd and in theory knows her better than any other relative - still doesn't GET it .
She is doing so so well and I'm proud of her walking but she just doesn't have the same stamina as other children and my mum needs to know that. Just before she fell asleep in my arms she said 'please mummy no walking tomorrow, I don't want to leave the house' .
Guess what? I've said nothing to my mum because I daren't upset her as I need her help so much at the moment for various different reasons. Pathetic really.
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DD came back from a weekend with my mum saying she wasn't allowed to use her wheelchair.
16 replies
Hangingbellyofbabylon · 28/06/2009 23:03
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