How long can people go on without sleep. DS started sleeping better about three months ago. We didn't trust that it would last, but our bodies have gradually got used to not being so sleep deprived. Now, in the last 2 weeks, same old problem back again. He is waking about 5 times a night.. so we have gone back to the routine which we were advised of by a SN HV who was helping us before... sort of 'controlled crying technique'.. but basically we are so tired that its hard to keep getting up to him. he just stands at he gateand SCREAMS... he wants 'brfast!' 'Noddy book' etc.. in the MIDDLE OF THE BLOODY NIGHT! Constantly! It can take 2 hours to make him go back to sleep.. then he's awake at 5 something.
Dh and I can't do this... we feel worse than we did before we GOT those precious period of more sleep.. having to go back to this! He doesn't want or need anything.. he KNOWS night time is for sleeping.. there is nothing the matter with him that requires night time attention. There is no justification for us being awake half the night and the other two children constantly disturbed. Little DD (6) gets so tired if she doesn't get a good sleep..and so run down. DS1 has to share a room with non-sleeping DS2 He needs his sleep too.. he has CF and needs NOT to run down in order to stay healthy.
They won't give us any respite.. apparently asking for 2 nights per month of DS staying elsewhere (somewhere nice obviously, which is what we were told we would be able to get.. THEY suggested this, then their panel turned us down! Twice!) is 'too high a level of care' to ask for.. since we have never had any kind of respite (if we had asked for and got daycare respite first, we would have been more likely to get the nightcare. We don't need daycare.. he goes to school.. thank God!)
I have just packed DH off to swimming club with all the kids.. he looked so tired and fed up (depressed even?) He is disabled and in chronic/acute pain all the time due to arthtitis. I have an OU tutorial this morning with an exam in two weeks and I am so tired I can hardly face the drive to college.
We love our DS to bits.. but WHY won't he sleep? We discussed Melatonin with the paed last appointment.. but it's not worth it.. he can GET to sleep ok.. just not stay asleep..and I really don't think going down the route of drugging him is the right way to go.
I can't do this no sleep thing again now.. my dad has cancer now and I/we are his main supports.. and there is so much other crap going on that not sleeping is going to be unbearable. How can you do a day shift followed by a night shift followed by a say shift following by a night shift endlessly..? It's not do-able! Something or someone will break down.. THEN they will give us respite I suppose. But I don't WANT to break down.. I don't do things like that.. I cope with stuff.. So whats wrong with me.
Yesterday I put such a stupid comment on here about parents of SN children being 'special too'.. I'm glad it got the contempt it deserved.. who am I trying to kid?
Sorry about all this.. but it has to be said to someone and there is nobody who wants to hear it.. they have been hearing it for too many years now.. it's boring.. and there are no answers.
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9 replies
SleepyJess · 19/03/2005 08:33
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