Have finally been brave and started a thread that I wanted to start a long time ago so anyone with a dc with CF please feel free to join in and share.
FWIW I have 2 dd, dd2 aged 16mths has CF, she was diagnosed soon after birth with meuconium ileus (sp?) and has double DF508.
In the past year she's been admitted quite afew times for both respiratory and abdominal problems, locally and at the surgical centre 200miles away (which is a bugger for dd1). She's grown pseudo in the past and "did" 7 months of nebs.
Oh and I managed to do home IV's in a tent in scotland as part of our holiday
Anyway If there is anyone out there I would love to chat.
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Experiences of CF (cystic fibrosis) - come and share I know there are a few of you out there!!
46 replies
DorisIsAPinkDragon · 26/11/2008 19:49
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01/12/2008 09:27
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02/12/2008 08:27
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