Hi needmorecoffee
Thought I would share some of my experiences with DS going into mainstream from special school if it is any help.
My son is nearly 7 and has CP (severe right sided Hemiplegia). He has been in Mainstream for nearly 2 years. Initially for us, the thought of him going into mainstream was really scary. I likened it to DS being the goldfish swimming with a load of sharks at the time. He could not talk (at that time) and used a communication aid like a little computer to help him. he wears splints on both legs and was still (and still is) in nappies. There were so many things to make him stand out to his 'normal' piers, I was terrified of 'leaving the system', but all the time I was thinking that his special school was not the 'real world', but mainstream school was.
We had been advised by his special school that he would not get the necessary stimulation mentally where he was and should give him a go at mainstream, because he should be in a school where he would be on the same level cognatively. So, that was that, after a very long summer holidays, DS started with a split placement and eventaully ended up full-time at mainstream.
At first we had quite a few problems with things not being in place. Ds has a full-time 1:1 all day. There was no nappy bin and I found dirty nappies stuffed in his school bag for me to dispose of at hime! However, this was soon recitified after a couple of weeks. The OT had to make sure he was 'placed' right in the classroom so he could see the teacher without turning his head too much. He has vision problems. He had to get a writing slope. He has an IEP (which I think is followed). There were a few letters to the head on my part because I know that if things are on file, they cannot be ignored. All in all though, the initial problems were just teething ones and once they were sorted, I was just left worrying about the social side of things.
DS was a bit of a novelty at first, with his little communication aid. It was a good tool to attract a lot of kids in the beginning. The class were good at accepting DS and added posters with makaton around so they could "speak to DS". The girls would be the most helpful, getting his coat etc, helping with doors. I had to go into school on one occasion and was really happy to see DS playing racing accross the playground with a good group of friends joining in too.
DS has been fortunate to have some good 1:1's and I think this has had a big implication as to him joining in with playground games etc. He has been gently coaxed into joining in and observed from a distance. This has been really important for DS, as I think the 1:1 should 'shaddow' the child, so he/she doesn't become solely reliant on the 1:1. This was one of my first initial worries, but it hasn't turned out that way.
At first, I have had to throw as much information to the school about Hemiplegia e.g. behavioural issues and frustrations not because he is naughty, but because of his disability. The 1:1 and teacher both went on a course to learn to administer diazipam if he had a fit. They have also been on makaton signing courses. So generally, the school have made a real effort to do all that is necessary to accommodate DS.
However, apart from all the things that have been put in place to 'manage' everything about DS, the biggest difference we have noticed is the social changes in him and how he has come on 'leaps and bounds' since being included in MS. His talking has improved ten-fold. This is solely because he has been 'sorrounded by chatter' and obviously there is the strong urg to WANT to talk like his piers and his has help enormously aswell. He is growing up in his local community and is always invited to parties etc. He has become part of the community we live in, not that of a school 15 miles away. he has firm friends now and goes on playdates. He is growing up with children who will be in his class until he leaves school which we have come to realise is the most important thing to us.
Equally as important, is the fact that his friends are very accepting of him and realise that not everyone is the same. I remember when I went to school there was 1 person in a wheelchair and that was that. At DS's school, there is about 350 pupils and about 50 of them have special needs. The kids are growing up learning that everyone is different and are equally accepted. This is massively important to me.
It has been a reall success so far, but don't mention Secondary School to me, because I will turn tail and run away .
Hope you have had some ideas with what I have written.