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SN children

How do you cope with the injustice of it all?

4 replies

Hassled · 21/11/2007 12:16

I have 4 DCs. DD (18) was diagnosed with severe depression early this year. She's on ADs and having CBT and is an awful lot better - to the extent that she's retaking her A Levels and thinking about Uni. However, she's been told she will always have to look out for warning signs of depression throughout her life. DS2 has Dyspraxia "with Aspergic tendencies". Again, he's getting lots of help and is happy and doing OK but he will always be Dyspraxic. DS3 has Verbal Dyspraxia, and what's prompted this rant is me crying over the SALT this morning when she told me that he will always have little relapses in his speech when he's tired or stressed or unwell. He's gone from unintelligible at 3.5 to nearly always intelligible at 5.5 - for some reason it hadn't occurred to me he would always have some problems.

The things is I realise my kids' problems are a tiny weeny drop in the ocean compared to some - I read posts on here that make me feel in awe of what some of you are dealing with. And I do feel blessed and lucky to have such wonderful children. But on their behalf I still want to stamp my foot and shout IT'S NOT FAIR - the kids will have their hearts broken, and struggle to understand algebra and all the rest of "normal" life as well as dealing with their SN. How do you deal with feeling like this?

Tell me to pull myself together!

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lourobert · 21/11/2007 13:07

Weve all felt like this at times and you say that your problems are a drop in the ocean compared to others but your still going through what your going through and it matters to you. There, of course, is always someone worse off but that doesnt make your worries and fears any less important IYSWIM..?!

Everyone worries about their kids whether they have SN or are NT and Im only talking as a monther of one child with SN so I really dont know what its like to have normal worries...that will be the day.

My son is severly delayed, he is 2 and only now am I feeling that Im starting to get on an even keel, I still have 'why me' days but they are farther and fewer between.

Its not fair, its not fair that my lo has the problems and mainly the seizures he has, but we get on with it. I guess Im lucky to have a very supportive family who help me no end.

It really is ok and normal to feel as you do.

Theres more id like to say but in a hurry but will make sure that i return to this thread later.

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Hassled · 21/11/2007 13:13

Thank you for replying.
It's not so much "Why me?" as "Why them?". And you're right - I do still worry about my NT son, but I also see every day just how much his life is easier.

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needmorecoffee · 21/11/2007 18:08

I think we all have days like this. DD has severe quadraplegic CP and is blind. Yetsreday we learnt she needs 5 teeth out. She's only 3 and has been through so much crap.
It really isn't fair. As a mum I would take it all from her if I could. It hurst to see my daughter suffering.

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onlyjoking9329 · 21/11/2007 22:19

life isn't fair that much is true, i sometimes feel the unfairness for my kids bit luckily they don't see unfairness which i think is a blessing for them

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