We finally have diagnoses of ASD, DCD/Dyspraxia and mild ADHD. Now feeling (amoung many things!) confused about what to share with those that know the journey we have been on.
DS (6.5) is on the higher functioning end of the spectrum so if we say autism, or even aspergers/ HFA to help people understand as these are more familiar terms (& applicable to DS - we have had many naysayers refuse to believe autism a possibility) we worry that this will lead people to have preconceived ideas & expectations of DS. We have considered simply saying he has dyspraxia, and explaining that this often comes with many traits of autism. Dyspraxia seems to have less preconceived ideas, so it could suggest DS is wired differently but with less expectations of particular behaviour.
DS is aware he is different - 'why doesn't my body & brain work like other children' - so he will benefit from us being open with him, but equally he gets very embarrassed & cross about us talking about him to others (in any way at all, not about SN). We are so proud of him & the way he battles all his struggles & are very open with him but his sensitivity makes me feel its not up to us to share the hat trick diagnosis & he may resent this when he's older... but equally is it doing him a disservice if we hold information back which could make people more patient & understanding?? Argh!
I would appreciate any experiences you have had of either being glad or regretting being open from the beginning; or similarly feelings having kept it only for those that really need to know e.g. school. If anyone had several diagnosis to consider, your experiences would be mega helpful too.
Please be kind! Feeling overwhelmed & just want to do the best for DS both now & in future.
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Diagnosis: what to share & to whom?
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Triotribulations · 09/04/2019 15:09
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