Do find in your area so many things once you are referred and can access things are unacceptably woefully shite?
Today epilepsy clinic, new seizure type has occurred so the appointment had been moved to a date when the lead specialist was in. She was sick so I met a general paed who was lovely but so out of her depth she was looking embarrassed. The epilepsy nurse was prompting her with forms/ relevant things. I spoke to her more. And that's it until the next review...
Speech and language, referred by social comm to sensory feeding group/ a nursery support sessions and email resources promised. None of this is done and 8 months later a random invite arrives that is unsuitable at best. With incorrect info on dates/ which sessions have what it. They don't answer phone to clarify conflicting info on whether to bring dd or not to first session.
Just two examples, but it's a real pattern in my area. So far of 4 com paed appts NONE of the referrals contained in the report letters have happened. Letters take over 3 months to even arrive, they are so badly not proof read meaning is lost in places.
Hearing impairment services in 8 months didn't visit nursery... I could go on.
In the middle of this the specialist nurses are intelligent and experienced women probably getting flak and constantly chasing these referrals.
I told them today I will not be attending anything else because of it, it gets me down and has no benefit to dd. I was clear she has I mentioned needs. The locum doctor and nurse looked a tad embarrassed at the history
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17 replies
FutureChicken · 25/04/2017 20:12
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zzzzz ·
04/05/2017 17:47
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08/05/2017 08:10
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