My DD3 suffered a ruptured AVM (brain haemorrhage type thing) at the end of December. She spent 3 days in PICU after emegancy surgery that saved her life, 14 days in a medical ward due to a chest infection and is now on day 10 on a paediatric neuro ward with a possible 7 more before she's allowed home with lots of community support.
We have spent the last 4 weeks on autopilot but now a discharge date has been set and we're starting to get our heads around her new needs and how we're going to cope (I know we will, we have no choice). She's done so well so far but it's hard not knowing how much of a recovery she is going to make, we don't know what she's going to be like in 2, 5, 10 years etc, we've been told some of her deficits won't ever fully recover and we're truly thankful that she's still here with us but it's hard when I keep looking back to how she used to be, and I yearn for my stroppy, gobby teenager back and maybe in time I will. Sorry if this seems insensitive to some of you but this haemorrhage happened so quickly and I'm having problems adjusting to what our 'new' life might be like.
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Getting my head around things, and failing miserably- ostrich syndrome.
4 replies
hennipenni · 26/01/2017 14:10
OP posts:
youarenotkiddingme ·
26/01/2017 20:26
Oh gosh what a shock for you all and what a difficult Time 
We often get told as parents of children with sn there's a grieving period - for the child/ future you imagined and the one that you face. So no, you don't sound insensitive. You need the time to adjust.
Cerebra are good.
Give yourself time. Celebrate the small successes.
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