Hello :) my name is Hillary, I am caring for one of the children from the orphanage our charity supports. I have taken Tam home (in Vietnam) to live with me as he was not getting the attention he needed. Tam was born with no eyes, bilateral cleft palate and is unable to swallow.He received his tube 9 months ago as he could not swallow and needed to weigh 10 kilo (22 lb) before hie could receive surgery. He has had his first surgery on his palate by some wonderful doctors from England who flew to HCMC Vietnam to help. I had a tube put in Tam as he was being force fed at the orphanage which is quite normal here but still not ok. I had some wonderful ExPat nurses help me to put in an N tube first now he has a Mic-Kee buton and back up Minnee button. I brought over a Vitamix from the USA and he has a great blended diet. He will have his palate closed in October with the help of another great charity Operation Smile. He drools so he wears a patch which helps with this but I am unable to get a swallow test here. He doesn't speak but understand Vietnamese and English (which is the language I speak to him in). My question is this, his blend is great thanks to a dear friend of mine who also has a tube fed toddler. Tam has been on this blend for almost 2 months and doing great. I think he is just not feeling the best yesterday and today. I have some packets of "Earth's Best" Organic baby food that is pureed so it can go through the extension . I am wondering if I can change his regular, very nutrient full blend to this food and should I continue with 60 mls water before and after the 3 tubes of food as I do with his regular blend? We have no Pedialyte in this country. I am hoping Tam will get adopted soon but until then I will be caring for him and could use some advise. Thank you so much!!
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Orphaned 2 year old tube fed in Vietnam, questions from guardian
11 replies
Hillaryb1 · 15/08/2016 02:04
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