My almost 4 year old has had her preliminary diagnosis of ASD confirmed by the autism panel. We only know this from chasing up her case coordinator who said she had sent a letter about this to the paediatrician - we have received nothing and neither has the GP. So she has been diagnosed with this and nothing has happened! No treatment, management or support at all. My husband is a clinical psychologist so we can try some strategies but we need help.
She has really struggled at preschool (there 2.5 days a week) since she returned after Christmas to the point where they have to put her in the office sometimes several times a day to stop her meltdowns. She has started flapping, biting, hitting, getting up at night distressed, unable to walk home safely along with all her other symptoms. It just feels like she has suddenly got so much worse and there are no avenues of help to pursue. I am expecting my 3rd baby this week and we are in the latter stages of a greatly delayed extension build to our house, so of course there is a lot of change going on which is hard for her; however I don't know where to look for help. Preschool have started the ehc plan integrated assessment, but she needs help from an ot or physio for her coordination problems, we need strategies for her behaviour etc.
I know there is little help out there, but I cannot believe that a child diagnosed with a neurological/neurodevelopmental condition can be offered literally zero support or help. It's a disgrace. Can anyone point me in the direction of where I should be going to look for help? Your advice would be much appreciated.
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After ASD diagnosis-what happens next?
9 replies
Buscake · 21/01/2015 07:29
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zzzzz ·
21/01/2015 09:16
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PolterGoose ·
21/01/2015 18:27
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