My ds is 4.5 with asd and a very severe learning disability. I've been concerned for some time that he may be having some type of seizures but paed has always said jerky movements, spontaneous laughing etc are down to his autism probably. A few months ago he started waking during the night screaming, shrugging his shoulders and scratching his skin. He seemed awake and non-responsive. He's non verbal with extremely limited understanding of any language or instructions. At present we have no form of communication despite high levels of intervention at special school. As mentioned above he jerks a lot especially going over to sleep but it also seems to go on most of the night. Anyway we had an eeg and his paed telephoned yesterday to say there was some spikes particularly when drowsy and also abnormal activity in the background. He fell asleep in his buggy during the test with melatonin. The paed said she didn't really have much experience with reading eegs and will need to speak to someone else. She did sound quite concerned and said she would phone me Monday with the next course of action. I should mention all genetic testing to date has came back clear. Is there anyone with experience of eegs that could possibly offer some advice. I'm not shocked by the result as I've suspected it for some time. I think the paed was more shocked at the results as in her correspondence before results she says "I've told the parents that this test will probably come back clear". Do these results always indicate epilepsy? I also asked her did she think my ds would need medicated in view of the results and she said "yes, possibly". Anyone?
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zzzzz ·
30/11/2014 18:57
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01/12/2014 07:33
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01/12/2014 15:13
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01/12/2014 20:40
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01/12/2014 20:49
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01/12/2014 23:47
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