that's all of my children dx with ASD. my daughter who is 10 was dx yesterday - feels like ive been punched in the stomach if im honest - this is the child I have been in denial about, didn't want to have aSD and it physically hurts at the moment to know that she is - I think it hurts because part of me feels ive let her down by not doing something similar but shes presented as a typical girl and has learnt to hide.
the specialist went into school yesterday and spent a long time with her - what she then told me she saw has absolutely broken me but we are stuck as we go through this awful process of statementing - thankfully they finish on Friday for summer - she will need specialist schooling but as she also has dyslexia will mean she needs a dyslexia school and likely she will need to board as no schools anywhere near here.
my LA are going to have a hissy fit when they find out but the tribunal ordered them to fully assess her which they have failed to do as they also probably didn't want to find out she has ASD.
the specialist spent a long time at home with her and explained HFA to her - after she left I asked my daughter what she said to her and my daughter who has the worst working memory ever has already forgotten what she was told so she is still in her bubble. I know she is still my fabulous daughter and she is amazing but my god, I feel the worse mum ever sending her into a school who have no idea whatsoever about her - the teacher is still bleating about how she wont be statemented if shes not 6 years behind!!! thankfully the specialist put her straight on that one but not sure again how much she will listen as the tribunal judge told her straight as well!!
thank you for reading and listening and for holding my hand through all of this
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I am now mum to 3 children with ASD
25 replies
bjkmummy · 09/07/2014 07:04
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