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Here some suggested organisations that offer expert advice on SN.

Anyone seen daphne keene for more complex, girl...?

(14 Posts)
greener2 Sun 30-Mar-14 21:13:29

Message withdrawn at poster's request.

AlarmOnSnooze Sun 30-Mar-14 21:50:32

I tried and tried to get an appointment, but after several emails, chasing phonecalls, and follow ups, and still no sign of an appointment, I gave up. We used MArgo Sharp instead. (sorry,not the most helpful response, but the inertia from DK's office was extraordinary).

greener2 Sun 30-Mar-14 22:29:42

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AlarmOnSnooze Sun 30-Mar-14 22:34:07

ah, all well and good then. I have heard only excellent things about DK herself, but the process of actually getting to see her defeated me!

yes, dd2 now has a dx - just waiting on the report (saw MS 2 weeks ago) - she was dx'd AS, and already have dd11 who has severe ASD.

If I had been offered an appointment with DK I would have taken it without hesitation. I am equally happy that we ended up using MS as that meant dd2 was observed in school, and MS had opportunity to talk to teachers etc, which was a bonus for us as school have not been onside up to now.

osospecial Mon 31-Mar-14 07:41:07

We had a dx from Dk for my dd last year who was a bit complex as she didn't have the difficulties with changing routine etc but has more severe speech and communication and social issues and NHS were 'waiting to see'. She now has a dx on NHS as well.
I would recommend her.

Skylar123 Mon 31-Mar-14 09:46:21

Dk has a new secretary , that's great! Her old one was great once you had actually managed to get through to her.
Good luck with your appointment greener if you go ahead. I have spoken to margo sharp too and an google search will tell you she is brilliant at what she does and very credible. I think a lot more expensive than DK though.

Skylar123 Mon 31-Mar-14 10:43:18

Greener I though you had a referral to gosh or was that another poster ?

blossbloss Mon 31-Mar-14 20:44:11

We took DD to Daphne Keen. DD has several conditions and is considered "complex". DD was extremely anxious about the assessment and very uncooperative.

Dr Keen had the measure of DD within a few minutes and by the end of the appointment had diagnosed her with several conditions. Her report was extremely thorough and her recommendations have helped us work out how to proceed with therapies and services locally. She had a lovely manner and put DD at ease in the consultation.

We have taken DS to see Dr Keen recently without even asking for a local NHS referral. He too was an unusual case but she was able to diagnose him.

She took our concerns about both children seriously and we were listened to very carefully. I couldn't recommend her highly enough.

greener2 Mon 31-Mar-14 21:12:01

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blossbloss Mon 31-Mar-14 22:18:44

Years of experience?

I do understand your concerns as I had some too. I wasn't sure about the lack of multidisciplinary assessment compared to other, more expensive private options. However, we had lots of reports on DD from other professionals that Dr Keen used to substantiate her diagnoses. Nobody has ever questioned the diagnoses since, including the local NHS services.

DS was trickier as he didn't have all these reports because he has less issues than DD and hasn't been through the "system" in the same way she had. Dr Keen referred to us an excellent Clinical Psychologist for further assessment and she confirmed the diagnosis.

How old is your DD?

greener2 Mon 31-Mar-14 22:26:27

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blossbloss Mon 31-Mar-14 22:33:36

It wasnt too bad - Less than Dr Keen. The Clincial Psychologist was amazing and well worth it. Her report was very detailed and i have learnt lots from it. School have found it very helpful too.

I remember being frustrated when DD was 5/6 as no one would make a decision about her due to her age. It does undoubtedly get much clearer once they hit 7or 8 but I bet Dr Keen could still provide a meaningful opinion despite her age. Indeed she seems to specialise in early years children and most of her questions on both children were about their younger years.

greener2 Tue 01-Apr-14 09:23:46

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SoonToBeSix Thu 03-Apr-14 17:52:22

My dd age 9 was given a dx of hfa/ aspergers by DK in November . I highly recommend her , she really "got" my dd if you know what I mean. It cost £760 but I saved up my dd's dla.

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