Firstly I don't even know what to tell people is wrong with DD, she suffered a brain injury when she was born and she has always been described as having developmental delay. She was doing really well until she was almost a year old and then she got very ill, had several seizures and it was after that its been more difficult. But describing her as having learning disabilities are generally construed to mean dyslexia (according to my teacher SIL) and DD is way WAY beyond those!
As shes got older its become harder and harder for her to play alongside her peers. She isn't statemented (yet) but does get a few hours 1-2-1 a week at nursery. We don't go on playdates or out much because her behaviour is so atrocious. DH and I communicate by text because when we try and talk to each other she just screams and screeches. She was very late to talk (now almost 4) but because she had so many physical issues when a baby/toddler we concentrated on those and did lots of physio/OT.
Now it feels we've been left to drift. I don't know how to help her, I suppose after almost 4 years with very little help I am exhausted (we have a typical baby too) and all the 'just read to her' or 'play alongside her' doesn't make any difference.
Very very fed up.
Here are some suggested organisations that offer expert advice on special needs.
SN children
I could really use some help re Cognitive Disability
Eyelet · 23/03/2014 13:26
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