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Will I feel sad forever

(10 Posts)
MooMummyMoo Wed 12-Mar-14 15:15:29

We have had my DD's diagnosis for four years now (chromosome disorder, severe GDD). Yet at times I still feel so sad about it all. Usually I keep myself busy (4 very young children so fairly easy) but when I do get a moment of quiet to sit and think the sadness catches up with me. Should I be 'over it' by now? Does the sadness ever go away?

2boysnamedR Wed 12-Mar-14 15:23:48

No you should never "get over it" its too important to brush aside.

Some days I am ok, others I could cry and cry. Sometimes I'm fine but can be set off over something little. If you need to be upset then you shouldn't hold back. It helps me process it

autumnsmum Wed 12-Mar-14 15:25:30

Hello moomummymoo please don't be so hard on yourself . I don't think you should be over it at all . I have a dd who has much less to deal with than yours and dp
And I were saying we can't believe she will be five in September she still seems like a little toddler anyway have a v unmumsnetty hug

bluebirdonmyshoulder Wed 12-Mar-14 16:17:01

My DD has the same and just when I think I'm 'over it' something happens which confirms that I'm really not.

But then I don't think we ever will be. Know what you mean about the sadness.

StarlightMcKingsThree Wed 12-Mar-14 16:18:02

I don't think you ever get over it no, nor do you come to terms with it.

But I do think you come to terms with the fact you will never come to terms with it iyswim. And you do reach a balance that allows you to enjoy life and your children.

That's my experience. It took time and I imagine I am still somewhere on my journey to coping with what sometimes feels like utter despair. But things are still a lot better than those horrific early years.

MooMummyMoo Wed 12-Mar-14 16:24:10

Thanks everyone. It's nice to know I am not alone in how I am feeling.

I think I am just feeling a bit pathetic today!

zzzzz Wed 12-Mar-14 16:34:10

I think I will be over it when I feel they are safe. I doubt that day will ever come.

I cry often for the life my children must lead and am alienated from most of my friends and family because they can't understand. They of course think I am fine, but I'm not and I never ever will be again.

autumnsmum Wed 12-Mar-14 16:34:18

Moomummymoo your not pathetic at all were all here for you

Laceyshoes Wed 12-Mar-14 18:27:16

My DD has the same and just when I think I'm 'over it' something happens which confirms that I'm really not.

Yup, same here. The impact is like a physical blow sometimes.

OP, I'm not as far down the road as you (going through diagnostic process atm) but I've wondered the same thing many times.

OneStepForwardTwoBack Wed 12-Mar-14 19:16:35

I think it becomes 'normal' over time but every once a while a small thing will happen, maybe just a throw away remark or seeing other people doing normal things and the truth wallops me full force in the face without warning. "Horrific early years" is a good description.

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