Here are some suggested organisations that offer expert advice on SN.
Autism clinic tomorrow, need help to convince them ds needs a SALT assessment(31 Posts)
I am in a similar place wrt dd2. On the face of it, she has no language difficulties at all, but look even slightly more deeply, and there are some very peculiar things going on.
I am going to concentrate on the difference between her ability and her production, and also on her processing - she celearly has a problem taking in language (only hears half of it, gets the wrong end of the stick frequently, even when given time to process eg reading, she will end up on the wrong side of the moral of the story!), .SO not a language problem per se (she is ahead at school, and can recover and cover up quickly enough for it to not present as a problem most of the time) but one which needs adressing nontheless if she is to reach her potential (and before it all comes crashing down)
Ds is the same Polt, I will get his SALT reports and give you some examples of his areas of difficulty etc
that's exactly like dd2, Polter.
Hugely advanced language use, but can't work out the simplest intruction, and frequently gets things the wrong way round - eg when asked ot identify which 3D shape would be least stable, she identified the one which would be least stable if turned upside down. It was defintiely less stable (the wrong way up) than the one actually labelled as least stable, but of course that wasn't the question asked...
she told em yesterday, that she wants to learnt he piano, because "the teacher who John* teaches looks really nice" *name of one of her classmates, who clearly doesn't teach anyone anything!
She cannot do any worded maths problem at all - really struggles to even begin to understand what to do. She can do the actual maths once the numerical problem is pointe dout to her though.
Howver, she can write fantastic poetry and stories, using amazing language
Have you spoken direct to SALT? You don't need anyone's permission to get assessed as far as I know, you just self refer. Number from local hospital or GPs receptionist.
You can always phone any professional direct. well I do perhaps I am just pushy?
I have talked to SALT, pead, EdPsych, SpDenist, Hearing and eye peeps...
Hopefully this will give some ideas.
Expressive language -
He speaks at length about subjects of personal interest to him and tends to talk about repetitive themes. He tends to steer the conversation around to these topics. He has some grammatical difficulties such as 'flied' and 'mistaked' and uses general terms when describing ie this, that, which is unusual in the context of his ability to produce, long, complex sentences.
Some of his replies are hard to follow, as his produced responses were slightly off track and assumes the listener has more knowledge than they do.
Vocab is limited by semantic difficulties (especially when anxious, he has previously scored 0.4 centile, then 75th centile)
Difficulty in structuring a narrative response unless he is supported by pictures, but with complex visual cues he gets side tracked by details and does not describe the central theme.
Receptive language -
Good auditory memory and verbal reasoning ability. He has difficulty processing language that is complex, sequential or abstract in nature.
Literal and inflexible understanding of language and difficulty in understanding word meanings.
This is masked by ds's reluctance to ask for help and his own recognition of when he does not understand.
Ds difficulties in social understanding combined with higher level language comprehension difficulties, means that he may not understand what another person 'means'.
Some tangential responses, where he has not understood the key issue.
Difficulties with concepts such as before and after.
Attention and listening
Ds fidgets and fiddles a lot. He will sometimes disengage, particularly if he hasn't understood what has been said or what is expected of him, rather than ask for help.
Ds struggles to grasp the underlying meaning of situations. He was not able to understand the relationships of the characters or to understand the emotions the characters were feeling.
He lacks theory of mind and so lacks the ability to take another persons perspective.
Delayed/detached play skills, becomes self absorbed in own choice of play and doesn't pick up on cues from others to join his play
Varying eye contact
Often doesn't direct his communication at anyone in particular and his communication attempts are missed by others.
Hope this of some help.
As you say when they meet your ds, as with mine ds is very articulate for most purposes and people think what the hell are you talking about language difficulties. Maybe stress it is his functional ability to use the language that he has in an appropriate and meaningful way.
I took ds to my GP yesterday and receptionist asked 'aww are you not feeling well' Ds 'I feel like ive swallowed a teaspoon on cinnamon' Receptionist 'oh, why don't you like cinnamon' ds 'I don't know, ive never tasted it' Receptionist 'oh ok' end of conversation!
Ds has watched 'the cinnamon challenge' probably with his older brother and just expects the receptionist to know exactly what he is talking about!
claw that description of language abilities pretty much sums up my dd2
Polter - search TOPS 3. DS1 was over 5 years delayed but no where near that severe on all other SALT tests - even those done by MS. Ironically LA SALT did the test but she was Indi not NHS. Tests higher level language comprehension.
Dd3 was assessed in the complex communication clinic twice. After the first assessment she was handed to the school based support but about 12 months later I wanted her theory of mind checked as school were still unsupportive and we werent getting anywhere with the Dx.
I wrote direct to the SALT who had assessed her before and explained what the issues were and she saw her again very quickly.
I recommend this root back to the SALT who didnt do the correct assessment in the first place.
Dd3 has just had an updated assessment again instigated by me but this time I emailed the school based SALT. She and the Asd specialist SALT have actually written a great report with lots of info about Dd3's issues and believe me hardly anyone realises how many difficulties she has, put it this way the report is 9 pages long!!
Good luck getting your referral and keep being assertive
handy apparently my ds doesn't have any need for direct SALT input!
Yay !! Great news polter
And great joke polters Ds
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