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Suspected asd in 7yr old ds1 & toilet problems!

(22 Posts)
PolterGoose Tue 10-Dec-13 11:16:34

Message withdrawn at poster's request.

lavenderpekins Tue 10-Dec-13 10:58:37

I think they'd be shocked by me doing that..! I do like his class teacher but I don't think the senco has much experience with asc.. Thanks for your answer to dla poltergoose :-) its interesting because actually ds has this thing about his coat that i just kind of forget possibly isn't neurotypical! He's worn the same version of his coat since reception from the same shop :-) but he doesn 't mind change of routines..? Do you think if dh was officially dx that would help? Ds school is 'good' but they have just been ofsteded so will look for the results - i'm not sure what other school options are tbh.. Only private .. Which might not necessarily be better?

PolterGoose Tue 10-Dec-13 10:45:39

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lavenderpekins Tue 10-Dec-13 10:41:08

Anything else i can do you think?
Thanks so much for the advice so far!

lavenderpekins Tue 10-Dec-13 10:40:09

Feel like i've been in a fight - senco won't start the statementing process even though he's been on action plus since year 1. Just called the hospital and he's on a 7 month waiting list for stage 2 asc assesement. And because literacy is at 25th centile his one to one is stopping at school.. Thats the only bit of school that is a 'bit ok' his words.. Anything I can do do you think?

PolterGoose Tue 10-Dec-13 07:53:13

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lavenderpekins Mon 09-Dec-13 22:31:05

Yes i think his presentation is often 'subtle'. I need to talk the talk but i feel like i don't really know where to start - he is very 'subtle' will look up that book poltergoose - thanks so much. Stupid question alert but what exactly would we gain by getting dla? Sorry for all the typos tired and i'm on my iphone!

PolterGoose Mon 09-Dec-13 22:14:46

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bialystockandbloom Mon 09-Dec-13 22:12:06

I was told by the paed (who diagnosed ds), the SALT, and nursery senco that ds wouldn't get a statement either... he has 20 hours a week TA. Yes you can ask them to get the ball rolling, talk to them at your meeting tomorrow.

lavenderpekins Mon 09-Dec-13 22:05:36

Oh and yes there's probably always been a level of anxiety around school loos..

lavenderpekins Mon 09-Dec-13 22:03:27

He's been on action plus since about yr 1 stockandbloom can i just demand from the senco tomorrow (have a booked meeting) the statement process to start?? I was told by his senco at his infants school that he'd never get a statement. He's not 'bad' enough.. Her words..
My dh has almost certainly got Aspergers.

lavenderpekins Mon 09-Dec-13 21:57:57

Thanks PolterGoose we wouldn't be illegible for DLA surely until there is a dx? Yes the assessment we're currently waiting for is from the hospital - so seeing a team of doctors etc for a full screening.. He was observed at the end of year two by two doctors but the report was so vague and they felt he was 'ok'. Luckily a really nice dr got back in touch after ds's new yr 3 teacher filled out a questionnaire.
I find it incredibly difficult to say what he's 'like'. However I sippose watching his probable neurotypical siblings grow older its becoming more apparent..
Main prob at home is he won't do simple tasks like beushing his teeth unless i remind him 500 times and touch his shoulder to draw him into me. And i feel i've always been bis sort of 'translator' for the world. He is well liked by all who know him however..

bialystockandbloom Mon 09-Dec-13 21:49:54

My ds would withhold all day at nursery, reception and part of Y1. Ended up with bladder infection, and couple of soiling incidents when he just couldn't hold it. Also affected his concentration, as you can imagine being desperate to go to the loo would do.

In his case (he has HF autism) he was really anxious about the school toilets. He hated the smell and the noise (of flush, of the pipes, of other children) more than the process of actually going, as he was fine at home (after lots of work when much younger). It took a process of gradual acclimatisation to them, step-by-step, with rewards for every small step he'd take. Eg first his TA made the loo a 'fun' place (eg stickers on the wall), and just going into the loo = reward. Then spending 1 minute in there = reward. Then sitting on loo (with trousers on) = reward. Etc etc gradually building up to actually going. Then repeat process for flushing. The whole thing took months and months, and lots of patience from his TA and our team.

I wonder whether it's anxiety about the toilets with your ds too? Like yours, mine still avoids using the school loo for poo if he can, even now, and will go almost as soon as he gets home. His body has probably got into this rhythm now, so maybe because you went to the park rather than home this is why it happened?

Are school providing any support for him?

While you're waiting for assessment (from Child Development paed?) have they talked to you about applying for a statement? If there've been concerns since he was in pre-school I'd think this would be justified.

PolterGoose Mon 09-Dec-13 21:38:30

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lavenderpekins Mon 09-Dec-13 21:30:29

coppertop He's extremely regular same time everyday after school but yes bursting by the time we get home. He 's never wanted to ask to go to the loo at school. Just thought today it would be nice to go to the park - i've got 2 other dc's..

lavenderpekins Mon 09-Dec-13 21:27:10

School seem to be on it and a letter has been sent to his new junior school asking he is also assessed by ed phyc. Because of dyslexic tendencies.
What is DLA?

coppertop Mon 09-Dec-13 21:26:15

It sounds like it might have been caused by the 'overflow' that sometimes comes with constipation. Lactulose can really help with this.

lavenderpekins Mon 09-Dec-13 21:23:02

Thanks so much for the replies both of you. You're right I really need to keep making a note of these things.. A couple of weeks ago he soiled himself in the car :-( awful!
There's been a large Q mark ever since preschool.. Hoping we get the assessment date soon..
Thats really interesting about the gap widening a 7 poltergoose did this happen for dc?

PolterGoose Mon 09-Dec-13 21:11:03

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Ineedmorepatience Mon 09-Dec-13 21:10:20

Ooops advice blush

Ineedmorepatience Mon 09-Dec-13 21:08:58

Hi lavender and welcome to the board.

Does your Ds struggle with constipation? It is really common and can cause soiling problems.

Also sensory issues around using toilets away from home can be a big problem.

You will get lots of advise from the lovely people on this board, stick around smile

lavenderpekins Mon 09-Dec-13 21:03:01

Hi there i'm at a complete loss.. :-( Number two accident today after school in the park - he didn't tell me he needed the loo just went off for a while in the bushes..
School suspects possible asd - we're waiting for an assesment date..

Thanks so much for any thoughts - feeling quite upset by it :-(

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