Hi there
My DS has aspergers and is 5.5 years old. We finally got to see the OT today after a long 10 month wait to see them. I had previously filled in a form for the OT when the referral was made to them. In this form I highlighted his sensitivity issues (sound, touch, aste, noise) which he is hypersensitive to. I mentioned that he was meeting all the physical milestones with his peers and that wasn't my concern.
It was a 90 minute appt where try did jumping on a trampoline, catching and throwing balls, threading beads, cutting, writing, puzzles, all the usual "gross and fine motor skills" tests, which I told them wasn't te problem! They then said he is fine and theY are discharging him as the NHS doesn't cover the hypersensitivity issues as it isn't proven to work! I was fla berg asters to say the least. I left there feeling they had wasted my sons and my time.
So basically I have been phoning private OTs in the area, and we just simply cannot afford to have him treated privately!
My question is really, have any of your children been helped by OTs on the NHS with sensory processing disorder and why did they Fob me off? What do I need to do to get him seen and for them to take this all seriously?
Sorry for the ramble..just confused and feeling let down by the system. We are in Kingston Upon Thames in Surrey btw.
Thanks so so much for reading. Really look forward to hearing from anyone.
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15 replies
giraffesandelephants · 03/07/2013 19:37
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PolterGoose ·
03/07/2013 21:56
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PolterGoose ·
04/07/2013 08:14
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