Hi
I've decided to apply for DLA for my children. One has mild/moderate hearing loss and I've been advised to apply by the National Deaf Children's Society and they can provide support in completing it.
but my son has dyspraxia. It's only mild. He attends a mainstream school and is doing ok. He was only dx recently.
Anyway, his main issues are following instructions and daily routines, organising himself - we had a huge palava last week when he tried getting himself ready for a school trip and even though we made a list the night before of the things he needed to do, got his clothes ready, packed his bag and I got up early to sort out his lunch etc and help him, he put the wrong clothes on in the morning, packed his lunch items almost one thing at a time, got distracted, forgot what he was doing... and we ended up leaving the house late. We have to have a list - he has to be constantly referred back to the list, I make him read out the next item on the list (so i know he's paying attention) and then he goes to do it (but not without me standing behind him reminding him (without getting frustrated!) of the list and what was on it).
For his bedtime/morning routines I have organised his things in order to prompt him, and have laminated some 'visual timetable' type things which seems to make it easier for him. I've also devised a timetable which enables him to be a bit more independent with things like his homework, chores, practice for things. But they only 'help' they don't 'solve' the problems.
He struggles to ride a bike and swim, so the paed told me we need to make more time for these things as I have to be with him to support him rather than just letting him go and do it on his own (at nearly 14) or us doing it just for fun. The paed has said that until the OT appt comes through, we need to spend time just practising skills like cutting with cutlery and tying shoelaces. And all these take time.
He's seen the paed once who, because he said that there were no issues regarding muscle tone or nerves, that he was discharging him from the hospital. And he is on the waiting list to be seen by the OT.
I'm wondering if it's worth applying for DLA for him. I think he'd be eligible just for the sheer amount of support he requires to do everyday things. But I'm aware that I only have him as my benchmark and that there are other parents on here who describe their children and their situations sound a lot more demanding.
I suppose my real question is that, on the DLA forms it asks about outside agencies you are involved with. We aren't involved with any atm. Is this going to go against us? Is it purely a case of providing evidence of a dx (the letter from the paed to GP confirming dx) and then detailing the impact etc. on our daily lives? Will it matter if there isn't a lot of supporting evidence from outside agencies?
thanks.
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Applying for DLA for son with dyspraxia - couple of questions if I may...
16 replies
FolkGhoul · 07/11/2012 12:00
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