Hi to all, have been wanting to post for a while but struggling to know where to start there is just so much stuff I could be writing for a week about ds in efforts to give all information and as it stands right now I am not all to sure what is important and what isn't but I really could do with some been there, done that, got the t-shirt and lunch box advice so have plucked up the courage to have a go.
Ds is 4.5 and started school in September. He has significant speech and language delay and problems with glue ear in past. I knew school was going to bring issues but even though I have long had the feeling that ds has more going on then what I have just said I either hadn't realised or was suffering a bit of the old denials about how many problems my lovely boy has.
Over the last couple of weeks it has really kicked off, ds is having many issues in school the one that needs the swiftest action being his use of violence (not going to say aggression as there is nothing aggressive about it). By posting here I know that everybody understands that i know the behaviour is unacceptable and I know it is wrong for the other children to have to put up with it and while I am not making excuses for his behaviour ds does have his reasons and he is not doing this to be nasty or naughty, quite the opposite, he is hurting the children he likes and wants to be friendly with.
Ds has been at Pre school since 2.9 years old and I also have a 7.5 year old dd yet ds presents as an only who has been at home his whole life with no social activities. He has never had friends but in the past this has no bothered him, he was happy as he was but now he actually wants friends and doesn't have the first clue.
I have had him back at audiology and he is not hearing to well on one side again but they have confirmed that his speech and language problems would not be caused by this and have told us to see GP for referrals to be made, exactly what I was hoping as I knew his hearing issues are not the cause, he sees GP this Wednesday. He is already under SaLT but trying to get them to do anything is a nightmare, school are now also putting a rocket to them in effort to get him proper input from them, last time we saw then they just said his language needed to mature before they could work with him but problem is his speech isn't maturing!! He has the speech if a just about 2 year old. He lacks many simple nouns, will parrot the word back at you then not know a minute later, a three word 'sentence' is the best you get although his comprehension isn't too bad, far more age appropriate.
As I say there is so much more, he is a lovely boy though who gives lots of love, he is bright, can read more then he can say although most of his reading is by memorising as he wants you to read absolutely everything he sees to him, he is very good with numbers and out of this world with computers, he would be on some tech gadget 24/7 if you let him.
I have come to reslise that I still feel like I am parenting a 2 to 3 year old toddler and I am exhorted, I am disabled myself and haven't had a great year and now things are starting to really move with ds I just feel worn out and I know this is just the start!
It is a little early on this road to be hoping for diagnosis from his proffetionals and I am sure we will have a long wait for new referrals however that little voice in the back of my head that mutters in the dark and I am only just allowing proper voice to has felt since he was about 18 months that is needs are more complex then hearing issues and speech delay and that he us probably on the high functioning end of the spectrum. I don't want to get bogged down with speculation but have been reading allot on ASD as the advice on methods to help ds with his current problems is good, I thought I was quite clued up but I am still learning loads, same is true for the path we are now on.
I guess I am looking for some hand holding, advice and opinion but most of all just to hear from people who are going through it all to or are further down the line.
I wouldn't change my beautiful happy boy for the world, all this makes him who he is, how could I wish it away but I do wish the world were a slightly easier place fir him, that now he wants a friend he could have one (although the children in his class are all very nice and don't seem to be holding being clouted with slippers or s cached on the face against him... It's the mums I worry about!), I just wish it all wasn't so hard for us all, some days I could just cry forever for him but then I see his happy smile and you can't help but smile to.
Thank you for reading, do ask if I haven't explained something well or missed out something important, I have missed out tons of stuff about him as, well I could write a book of ds!
(I am sorry for bad typing, spelling, typos, I can't feel my fingers much and my eye sight is very poor, not a great combo, I do hope I can be understood!)
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Just at the very start if the road, hand holding and words of wisdom needed!
12 replies
roadkillbunny · 29/10/2012 23:34
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