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Help, scared things are getting worse...

(9 Posts)
LollipopViolet Mon 29-Oct-12 20:21:29

With my eyesight sad

Daytime is fine, but tonight, coming home from my voluntary job, was really struggling with my night vision - was having to look for brightly lit landmarks to know where I was on my bus route home. Then crossing some roads to get home was having problems with the glare of headlamps.

I'm sad, I don't want this. This was at 5.30, what will I do if I get a job and have to finish later? I can't rely on lifts all the time, I hate how reliant on them I am now, and don't want to be more of a headache for my family than I already feel I am (they're lovely btw - they always offer me lifts when they can and never complain about it).

I'm due an eye test in a couple of months, think I need to mention it to my optician but what can we do about it? Probably nothing, and I don't really want to have to start carrying a symbol cane <stubborn, like to keep my disability invisible> or something similar.

I thought I had years before the decline started, obviously not sad

bialystockandbloom Mon 29-Oct-12 20:42:58

I am sorry.

I don't know your exact condition I'm afraid, so this might be absolute rubbish, but could it be anything to do with the clocks going back and suddenly being dark earlier? Maybe your eyes will adjust more slowly?

Yes do mention it at your next appt, of course.

The main thing I wanted to say was that you must not feel guilty or worry about being any sort of burden on your family - you are, I am sure, not a headache for them. They love you and care about you, of course they're going to help you willingly and unconditionally. You'd do the same for one of them, wouldn't you.

moosemama Mon 29-Oct-12 20:53:40

Lolli, I am so sorry you are feeling this way.

Have you shared your fears with your family at all? As bialy said, you only have to read the threads people put on here day after day about their loved ones, to know that you are anything but a burden to them. They love you unconditionally and want to do their best for you, to help you have the best life possible.

Please don't be alone with your worries, I can promise you they would be devastated if they knew you weren't going to them for support.

Also, don't panic, it could be something simple and nowhere near as bad as you think. Autumn Fever (like hayfever, but an allergy to autumn leaf mould) can cause blurring of vision and sensitivity to bright light, as can the start of a simple eye infection. Both can be easily treated by drops. I would advise you to go and see your GP in the first instance, to rule anything like that out.

((hugs))

coff33pot Mon 29-Oct-12 21:53:12

oh Lolli (hugs) to you x

I dont like the idea of you worrying alone either. I have no experience with sight loss other than I wear glasses (when I dont forget)

It could be something simple and if its recent have you had a cold/flu lately as that can play havoc with brightness and blurriness as can migraines.

I second talking to you lovely family x

coff33pot Tue 30-Oct-12 15:24:53

How are you today lollipop? X

LollipopViolet Tue 30-Oct-12 19:02:29

I'm OK thank you - managed to get home before it got too dark smile

For info, amongst other things I have limited peripheral vision, nystagmus and optic atrophy. Vision isn't blurry or anything, but it seems my night vision isn't so good now!

I'm hoping it's just that yesterday was the first night coming home in the dark, and I'll adjust. Pretty please eyes, just once, do something nice smile

LollipopViolet Fri 16-Nov-12 12:10:48

Right, I had my eye test today.

Night vision deterioration could simply be due to my prescription having changed - right eye is slightly better (yay!) left is slightly worse (boo!).

But, my new optician thinks my eyes are "interesting" - they don't have many complex cases. So, for free, she is going to do:

A field of vision test
A CT scan of my eyes

In two weeks - fun times ahead. She also showed me her little pressure testing thing, and sprayed it on my hand to show me what it's like. At some point she'd like to get a baseline of my pressures. I might get her to do it when I go for the other tests, to get it out the way!

So it's not a glum as it could be, although only being able to read the first 3 lines on the chart is a bit disheartening.

Ineedalife Fri 16-Nov-12 13:22:56

Glad things not too worrying lolli,

Good luck with the testssmile

moosemama Fri 16-Nov-12 13:39:59

Good to hear things aren't as bad as you thought they were. Hope the optician has managed to put your mind at rest.

I have had the pressure test done a couple of times - although I always get told off for flinching/moving. blush It's an odd feeling, but not painful at all.

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