my nearly 1yr old son has central hypotonia, he has a jejunostomy and gastrostomy, feeds over 18hrs a day continuously. We have been in and out of hospital since birth, seeing about 10 different people like physio, salt, neurology, genetics and STILL no diagnosis, treatment or outlook. I just need to know if anyone has gone through this and what does it mean ie. lifetime care??? Help
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hypotonia in DS - anyone out there with same??? need advice
8 replies
mrssouth · 14/09/2011 21:54
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