I'm sure this has been covered many times before but I'm relatively new so be kind
My boys are coming up to 7 years old and despite years of tests, no-one has been able to give me a diagnosis of why they have the problems they have got. They've had muscle biopsies, MRI scans, blood tests, chromosone testing, genetic testing, lumbar punctures. And after ALL that, I don't have a reason why they are like they are.
I just feel a bit "cheated". Not the right word, but it's frustrating.
I also wonder about my NT daughter. What are the risks of her having SN children? If I had a diagnosis for the boys, maybe it would help?
Am I making any sense at all?
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SN children
Never getting a definitive diagnosis
21 replies
TalesOfTheUnexpected · 02/09/2011 09:40
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