So I don't just cry and come away forgetting to ask all the important stuff1
I have a log of DD's odd night time behaviour and a list of all the funny turns she has had.
I have a little bit of film footage on my camera which I will show him but am not sure I have ever actually caught anything.
DD has quite serious SLI which badly affectes her understanding an learning so obviously I want to know how this all ties in-we will be having an MRI so my guess is he will say wait and see though.
DD has just been found to have a chromosome deletion which may or may not be relevant.
DD has a genetic condition affecting her ability to deal with illness or stress on the body so I need to ask about epilepsy's affect on that.
Whetehr to medicate or not is going to be a huge issue so I hope he won't expect us to decide then and there.
Mostly I want to know prognosis long term but I bet he won't be able to answer that.
Anything else?
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Long awaited neurology appointment tomorrow for probable epilepsy diagnosis-can anyone help me gather my thoughts please?
15 replies
used2bthin · 30/08/2011 20:38
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31/08/2011 00:33
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31/08/2011 08:34
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31/08/2011 08:35
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