I am still coming to terms with my DS's autism diagnosed last November but have embraced it and found workarounds for the difficult behaviours we are faced with. These include the use of TV during mealtimes (which I am not proud about but there is no other way of rooting him to the table), bribery to actually eat - I put the reward, usually a mini smartie, within his sight to get him to eat his sausage etc and use of my iPhone to watch uTube videos of steam trains which he likes when he needs some downtime after a burst of excitement or after his nursery school
DS is not especially severe to others who only see him for the odd weekend. I get constant comments of 'are you sure of the diagnosis', 'aren't you just spoiling him', 'have you tried mealtimes without the TV' etc
I find these comments so incredibly unhelpful like I have not got a clue what I am doing and should listen to their better judgement. I think I am perceived as an overly neurotic mother of a son who does not seem 'that autistic'.
I also get the 'all children do that' comments when I do give an example of his autistic behaviours.
The comments feel totally undermining and unsupportive and make me feel quite isolated. They come from some dearly close friends and members of family with children of their own. I desperately need some simple but clear retorts that do not offend but put into words why we operate like we do.
Does anyone have any (sensible) suggestions ? Many thanks
PS Even DH says DS just needs 'more discipline' and he 'has to learn' that the food placed in front of him is all he is going to get and to eat without TV. Yet same DH is nowhere to be seen at a single mealtime !
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Succinct, explanatory lines for unconvinced friends & family of ASD DS (age 3)
10 replies
Toppy · 21/06/2011 18:19
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