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Additional medical problems popping up ... grrrr

7 replies

Triggles · 18/06/2011 21:38

I swear I have days where I think "my god, what next?" but I really hesitate to ask....

DS2 has the SNs concerns (suspected ASD/ADHD/dyspraxia/speech and language delay/sensory processing problems), diagnosed within the last 6 months with asthma (and put on inhalers), eczema (and put on medicated creams), and then yesterday the OT says "oh, by the way, I believe he has hypermobility as well."

Can't he catch a break at all? I know there are people with much worse problems out there. But he's 4yo and clueless as to what's going on with all this. And the list just seems to keep growing every time we turn around...

Sorry, rant over. It just really upsets me sometimes. I think I'm having a "damnit it's not fair" day. Watching DS2 struggle to cope today has really made me feel down today - just sad for him and trying to comfort him and couldn't really much.

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chuckeyegg · 19/06/2011 08:41

Sorry you are feeling down it can get to you sometimes. It can feel quite unfair at times.

Big hugs. xx

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Triggles · 19/06/2011 10:44

Thanks. I'm feeling a bit better this morning. Just one of those things I suppose, isn't it?

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EllenJaneisnotmyname · 19/06/2011 10:52

Gosh, Triggles, there seem to be lots of children on Mumsnet that have ASD and hypermobility, but apparently there's no proved connection. There seems to be too many for it to be a coincidence. This might give his difficulties in walking to school a bit more cause, other than behavioural. Has the OT recommended anything, such as shoe inserts or anything?

((((Hugs)))) for you, it really isn't fair.

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chuckeyegg · 19/06/2011 11:37

DS has lax joints and low muscle tone and ASD, it does seem common.

Glad you feeling better this morning. :)

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Triggles · 19/06/2011 13:26

He's had ongoing difficulties with walking anything other than short distances. I'm now wondering if that is tied into the hypermobility, possibly discomfort? I don't really know much about it. grrrr more research in the midst of other research. I think my poor laptop is going to wear out! LOL

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Ineedalife · 19/06/2011 13:40

Dd3[8] has hypermobility in all her joints, we were finally told last week during her physio assessment.

I agree that it is very common for children with ASD to have loose joints.

She needs inserts for her shoes and is being given a course of physio to try to strengthen her ankles.

She struggles to write much because her hand hurts and she is so floppy some days it seems like a massive effort to stay upright.

Is your Ds able to tell you if he is in pain?

Got to go out but will come back later because I am really interested in finding ways to help Dd3.

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Triggles · 19/06/2011 13:47

EllenJane - how odd - it didn't show your earlier post on here until just a few minutes ago. So I sort of cross-posted there and didn't see it initially. The OT hasn't recommended anything yet other than the caring cutlery. We need to speak to her further anyway, so will most likely hear more then.

Ineed - no, when he starts falling apart on walks, he literally ends up non-verbal. And when he's not falling apart, it's like it didn't happen - he can't remember or discuss it before or after. It does make things a bit difficult to decipher.