Hospital/s no longer giving melatonin?

[Marne]

At dd's ped apointment today we were told that they (ped's) have been told not to prescribe melatonin for any more children (your ok if your child already gets it). The ped was very angry about this and said its unfair that parents may be forced to buy online.

Has anyone else heard this from their clinic/hospital or is it just ours?

[intothewest]

No personal experience,but yes I've been told by someone 'who knows' that it's being cut alongside many other things

[2shoes]

bloody hell
that is shit
words fail me

[brandy77]

i was contacted by my gp before xmas to ask if i would change to a longer reacting (?) melatonin for my son as it would save £500 a year. gp decided to phone my sons paed who said no hes staying on the same tablet, terrible situation

[2shoes]

wonder how long we will keep it the idea of no sleep does not appeal, so we would have to take her of the meds that cause the insomnia....but they really work, and help control her extra movements.

[ApocalypseCheeseToastie]

I posted on here ages ago they were cutting lots of things, I've been told that a lot of LHAs will be stopping free nappies, going by this I assume it will be the up and coming ones ?? Sneaky buggers, they'll have to lower the bloody price of them then !

[mariagoretti]

Do you all remember that it wasn't originally licensed in the UK?, which was why only hospitals tended to stock it despite it being cheap as chips. I think this is something to do with a new, expensive brand now having been licensed; presumably that means the fights about whose budget it comes out of have intensified.

[cansu]

My GP tried to take ds off it and put him onto cheaper tablets (which he can't take!). i made a fusss and he backed down. We now have the kidnaps one. I was told that PCTs have asked all GPs to cut back on these medications which are known as specials. I googled my PCT and specials and found all sorts of interesting documents about the price of the different brands.

[ApocalypseCheeseToastie]

Yes, yes, I toollllllllllllllllldddddddddddddddddd you, anything deemed as 'unnecessary' is going

[ApocalypseCheeseToastie]

Fucking hell riven, that's terrible !!

Have already had the dcs social worker sniffing round trying to pinch my hard won 4hrs a week respite, I chased him out the house screeching like a banshee I was prepared for him tho, crafty bastard, he disguised it as asking what outside activities the dcs are involved in, basically here anyone who gets decent family support, is coping well or who has their child in activities where they don't need parental support is having their respite stopped.

I know many who have had it taken including a single mum who has two with cystic fibrosis

[lisad123isasnuttyasaboxoffrogs]

madness I know they kicked off because DH drugs cost a load of money and his under hammersmith but local hospital have to provide it. There is only 2 people in this area that are on this drug and we have no end of trouble everytime he goes to get new dose!!
I know quite a few mums that buy melatonin over the internet, very scarcy

[goingroundthebend4]

were struggling to get any Dp at all, as ds is apparentley not disabled enough even though they agree by their own standards he is a child in need.

So far meetings are all talk no help

and bugger on the drug front ds does have problems with sleep was hoping when see them tomorrow that they was going to prescibe something to help with it

[ApocalypseCheeseToastie]

Goingroundthebend, I only got it because I very nearly had a full breakdown (years of no sleep and the isolation took it's toll) the house was an absolute tip, I just couldn't do it anymore.

It was an older social worker who waded in and organised the respite, still not getting any sleep tho but I have something to look forward to in the hols at least

[ApocalypseCheeseToastie]

That's what I do when they're at school riven, but in the holidays you can't do that, do they understand that ??

Do they shite !

[ApocalypseCheeseToastie]

They are twats, I only met the new one I had once in two years, she never met the dcs and has left now, I only met this new one because he was trying to nick me respite !!

It's because you cope too well riven, my sis dosen't cope very well at all, she gets more help than anyone I know (which she needs to be fair) seriously thinking of taking a leaf out of her book, might get some help if i'm seen as incapable !!

[Spinkle]

Just had a letter from my community paed offering me info about melatonin and to read it through and then made a decision to go for it if we'd like to. So we've just been offered it (in a round about way)

At the moment though I don't really think it's too bad sleepwise, though it goes in cycles. Am half tempted to take them up on it on if they are going to whip it away...

[ApocalypseCheeseToastie]

I would sprinkle, have been offered it for ds but always said no because it won't stop him waking at 2am ! but am sorely tempted, just in case

[FanjoForTheMincePies]

That must be why the neuro was very cagey when I asked about it for DD

[ApocalypseCheeseToastie]

Aaaaaaaaaaaahhhhhhhhhhhhh, the extent of the cuts are slowly coming out, it's fucking stupid, sleep is essential to be able to function ffs !

[ApocalypseCheeseToastie]

I know, they have us over a barrel, said to my social worker, make cuts, fair enough but if you lot get two chop happy with respite care it will backfire in the form of neglected children and children being put into care, ultimately it will end up costing the state more.

[2shoes]

but they don't get that, they think we will just cope.......
just had 2 weeks of no respite/school and I am hanging by a thread.