My feed
Premium

Please
or
to access all these features

This forum is for Mumsnetters to discuss undiagnosed illness.

SN undiagnosed genetic conditions

Should I leave well enough alone for now?

5 replies

Babydevelopment1 · 15/01/2020 20:26

I have a 19 month old son who has met all his physical milestones,
He only had mama and baba as words and I don’t know if they are correctly used or if it is coincidence, he isn’t waving bye bye and is starting to clap his own hands.
He will follow a point most of the time, he rarely points himself, He loves interaction and seeks to play peek a boo using my hands and will clap my hands, he loves nursery rhymes and will smile and laugh while I’m doing them. He has started crèche for a few mornings a week. He is starting to use gestures. He loves interaction and will watch other kids in the crèche and will play near them. The crèche has told em he does engage with the other kids too.
He has an older sister that is on the ASD and he seems to be the opposite to her in many ways but he does watch her an awful lot with her gesturing etc. He has been referred to SLT for his speech but that’s it.
My question is should I push for an assessment based on his older sibling having autism or should I just leave it?

OP posts:
Report
Ggift · 18/01/2020 12:22

OP, my son was on the same boat around that age. I sensed something was not right with him from his 20th month. He was not doing anything my niece and nephews did. He did not point until we taught him when he was 25 months old. Clapped after 18 months, waved byebye at 20 months, didn't pointed or showed any of his interest. Except mama and dada no other words till 27months. And he never called us mama and dada though he say say that right from one year. When I contacted Go and told our concern they brushed it off saying wait for three more months as he did full arm pointing quite a few times. After two year checkup, he was in black area in lot many things, so hv visited us and from then, our assessment journey began. We are on the waiting list now.

Report
Ggift · 18/01/2020 12:46

My son started picking up words only after he learned to point to things. To our surprise, he picked up to point and show us his interest within three months. His vocabulary exploded after this. Now he has loads of vocabulary but less functional. He can point to car, can say car correctly, shows us car when we take him out, but when he wants one, he continues to point and cry. And he is not putting words together on his own. Probably, I need to wait for somemore time. My husband is now blaming me for not teaching him to point, when he was younger than one year. He says, if he had learnt, he could have talked now in sentences. I Don't know what to say for this, but I need to say yes, he learnt to communicate a bit better only after we taught him to point. I was working from home when he was younger, so would make him watch TV while I work from home, honestly I didn't spend playing or interacting with much time. He was on TV or iPad for more than six hours in a day untill we suspected developmental delay. Husband used in shifts, he could not spend time with him as well. There is always a regret and guilt feeling that we didn't teach him on time many things, so he is lagging behind his peers. Just venting it out.

Report
Jleeh · 03/05/2020 01:41

Hi just wondering if you have any updates on your little boy i'm in a similar situation with my current 22 month old son and very worried about him at the moment. Thank you xx

Report
Babydevelopment1 · 03/05/2020 17:30

@Jleeh my wee boy has really only got sounds(lots of them) but no words as such. He doesn’t point really but claps hands, plays peek a boo, play ball games and always seeks other people’s attention/company. I did have him with a SLT who just told me to work with him through play, I just find days that he’s trying to push out words then other days he’s not. It’s so difficult to know. With the current COvid 19 I’m not sure when I will be able to access services again, sorry I’m not much help to you!

OP posts:
Report
Sabu1234 · 11/12/2020 15:52

@Ggift how is your little boy now? It’s been 6months now, would love to know how he has progressed?

Report
Please create an account

To comment on this thread you need to create a Mumsnet account.