Hi everyone. I’m hoping someone in a similar situation can give me some advice.
My son was born prematurely at 32 weeks and he was in NICU for 2 months mainly feeding and growing. Wasn’t on ventilator but needed oxygen support for 2 weeks. Fairly uneventful.
Born in August due date was in October. So he has to go to school a year earlier then expected and also being born early with delays puts him at a huge disadvantage.
3.3 years down the line he had a GDD diagnosis since 2 years old. He sat at 8-9 months. Crawled at 1 year old and pulled up to stand at 13months. Walking with a walker toy at 18 months and walking independently at 22months.
He’s delayed still as he can’t yet walk up stairs with ease. Uses his hand on the rail for support. Also he will fall if he’s walked into. He isn’t fully stable yet. But he climbs on chairs and sofas and everything. But he’s making progress every week and gets better and better and more and more stable. Normal movement pattens. He has hyper mobility so I think that’s why he was delayed here. The physio/ OT he has signed him off.
Cognitively he’s delayed. Knows some colours and shapes if I ask ‘which one is’. He loves books and points out all the pictures when I ask ‘where’s’ for lots of items. He sounds out plenty of animal sounds when I ask ‘what sound does this animal make’. Does some simple puzzles. Esp peg board puzzles with circles. Can draw a circle when asked and uses crayon between thumb and finger.
He is very speech delayed only has single words. Started talking at 3 but used to babble fine before. He points at everything he wants since 12 months. This is how he used to communicate and knows plenty of gestures. He follows lots of single step instructions and some 2 step instructions too. But he not yet toilet trained. Not sure if he’s ready.
I think he’s 6months to 12 months behind in most and 18months in speech. He makes progress all the time but I’m still very worried why he’s delayed?
Self care skills he helps getting undressed but can’t do it alone. He can feed himself with hands and a spoon. He knows how to brush his teeth and wash his hands but doesn’t like doing it. He’s delayed for a typical 3 year old in this area too.
School he’s had senco since 2 (private nursery) and now He’s in preschool and they want him to have a EHCP for reception. They say he will struggle without it and the gap will widen.. Do you think he will quailify for this? Does he need one? Isn’t the school SENCO enough? They said they don’t have funds and lack of staff maybe this is why? They say he will get knocked around on a play ground and he’s still in nappies and needs encouragement to eat at lunch. (He’s not a fan of eating. He’s lazy)
I’m worried about ASD or learning difficulties. Will he catch up with support? Are these likely with what I have discribed? Feeling so down and emotional for days now
I should also add. He has no issues with eye contact and smiling and getting excited etc. He’s ur affectionate and loves cuddles. He’s always trying to get me attention and is good with interaction too. (When we reading together)
He copies actions other do all the time. Copies cartoons and gets excited and is careful and affectionate around the new baby in the family (neice).
he may not say much but he does recognise lots of nursery rhymes and does the actions for them.
He has pretty good memory. I tell him something once or twice and he picks it up. Especially recently.
Thanks! Any input and positive stories are appreciated!!
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Premature birth
Preemie now 3..diagnonised with Global developmental delay. Any chance of catching?
21 replies
Ayd7815 · 18/01/2019 22:59
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