Any success stories from miscarriages/chemical pregnancies. Advice? Just a rant really!

(14 Posts)
MollySxx Tue 15-Dec-20 20:51:10

So in 2015 at 19 I found out I was pregnant with twins, identical. They developed twin to twin transfusion syndrome (TTTS) and I lost then at 24 weeks gestation and I had a stillbirth. Fast forward to 2020, I found out I was pregnant in March, had a miscarriage at 9 weeks in the April. On 24th October found out I was pregnant again, 31st October started bleeding which I was told was my period and I had suffered a chemical pregnancy as tests were showing negative and bloods showed next to nothing HCG.

In November I had no period, so I tested and I was getting faint positive and digitalis were saying “not pregnant” I then started bleeding on Sunday, I passed the grey tissue, so I’ve had yet another miscarriage which I believe I was 7 weeks pregnant.

I’m at a loss now, will I have this issue every pregnancy? Clearly no issues getting pregnant as I can, but it’s just withholding the pregnancy. My doctor is now referring me to a miscarriage clinic. I’ve had blood tests for Thrombophilia which have come back all clear and fine and I don’t have that. But is there anything else medically that can be done? I just feel so drained and fed up.

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anniebu Tue 15-Dec-20 22:15:10

There can be a number of issues leading to pregnancy loss. One thing to check is rhesus factor (if you are rh- and your partner rh+, your body could be rejecting all pregnancies after the first.) This is easily treated if diagnosed. Another potential reason for multiple miscarriages may be low progesterone levels that are causing bleeding. Also, thyroid problems are known to add to fertility struggles. You need to know if your TSH t3 and t4 levels are within range. These are common problems, but there may be others. You will probably run a lot of tests now that you have been referred to the specialist clinic. I wish for you to find the answers you are looking for.

Mishmased Tue 15-Dec-20 23:06:29

You've been through so much. Just want to send you virtual hugs and strength thanks

shelbyrae Tue 15-Dec-20 23:33:15

Hey, I just wanted to say you're so strong for going through so much and I'm so sorry you've had to go through it.

It's really encouraging that you're being referred to the clinic - hopefully you'll get help and answers there

My mum had thyroid problems and had around 10 miscarriages and a stillbirth but managed to have three children.

Good luck with the clinic and just keep up hope that once you are properly investigated and diagnosed things will change! Xxx

fib11235 Wed 16-Dec-20 02:06:08

Apologies you’ve had to go through all this. I’m sure the miscarriage unit will cover all the tests and treatment options with you but just wanted to say from my own reading that there appears to be some evidence supporting the use of supplementary progesterone in early pregnancies where the mother has suffered 3 or more prev miscarriages. May be worth asking about?

MollySxx Wed 16-Dec-20 07:46:22

Thank you ladies! I’ve heard of the progesterone, so I’m am going to say about it when I do get appointments. My biggest fear is just me and my partner not being a match when it comes to making a baby and that is what scares me the most that it comes back to say our bloods or whatever it may be clash

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Nimsay1 Wed 16-Dec-20 08:45:14

Sorry you've been through much, it's all so emotionally draining. I think it's very unlikely that it's down to you and your partner being incompatible.

I had 4 miscarriages between 5 and 9 weeks. I went through the miscarriage clinic with the NHS but they could find nothing wrong. Then a friend of mine told me about reproductive immunology, where your immune system affects pregnancy. I went to the Zita West clinic in london. They found I had a mild blood clotting disorder which the NHS don't test for, along with an overactive immune system (which correlated with a history of glandular fever and post viral fatigue syndrome in my 20s). I was treated with steroids, blood thinners, progesterone and intralipids and I now have a perfect 3 year old and am 20 weeks pregnant with my second.

Perhaps check if there's a reproductive immunology clinic near you and see if they can help. Lots of luck.

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MollySxx Wed 16-Dec-20 10:12:05

@Nimsay1 that’s so interesting to know. You’d think the NHS would offer that if it’s a reason for women to go on and have pregnancies. So reassuring to hear you’ve got one and one on the way. Congratulations x

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Nimsay1 Wed 16-Dec-20 11:21:45

MollySxx

*@Nimsay1* that’s so interesting to know. You’d think the NHS would offer that if it’s a reason for women to go on and have pregnancies. So reassuring to hear you’ve got one and one on the way. Congratulations x


In other countries such as America and Australia, these are standard tests, but as there is limited research so far, the NHS aren't prepared to back it yet. But I know anecdotally so many women, friends and friends of friends, who've either suffered from recurrent miscarriage or multiple failed IVF who've gone on to have successful pregnancies after this treatment.

LittleTiger007 Wed 16-Dec-20 13:11:44

You poor thing, you have been through so much. Hopefully you will see a consultant and they will be able to help.
I had a miscarriage 4 years ago and again earlier this year(no other pregnancies/children) after this one they did a hysteroscopy - which involves inserting a camera under general anaesthetic. They found a fibroid and some endometriosis and they removed both there and then. I fell pregnant 6 weeks later (17 wks now). Apparently the fibroid made any pregnancy unviable but it didn’t show on a scan. I’m so glad I had it done and recommend you ask for one if it’s deemed appropriate. Good luck OP.

MollySxx Wed 16-Dec-20 13:45:08

@LittleTiger007 Oh my WOW! Congratulations💞 people have mentioned endometriosis to me in the past. When I say people I mean friends. Before I see anyone and while I’m waiting to be seen I’m going to write down all questions and explore everything you ladies have suggested, this is why I made this thread to get opinions and stories of what people have gone through. I’m currently 25, will be 26 next year so I’m just glad I have this all so early to explore and get to the root of

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Grognonne Wed 16-Dec-20 15:59:54

Hi, I also had three miscarriages and was referred to the miscarriage clinic. I was diagnosed with a mild blood clotting disorder (this was through NHS testing), and prescribed blood thinners to take when pregnant and six weeks after birth, and also cyclogest for up to 16 weeks pregnant. They also did various karotype tests for genetic disorders which came back fine. I had lots of ultrasounds and a further MRI when they found a uterine septum (now removed). The NHS miscarriage clinic has been amazing so far, I wish you luck and just wanted to reassure you that you’re in safe hands!

MollySxx Wed 16-Dec-20 16:26:34

@Grognonne again, so reassuring to hear someone’s experience. Did they run tests on your partner? Or was it just you? I’m going to write down as many questions as I can from hearing from you all

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Grognonne Wed 16-Dec-20 19:05:56

@MollySxx - hi, yes they did the karotype test for both of us.

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