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Fundraising In loving memory of our son James!

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vio · 12/03/2008 16:31

Our son James was born on 28 Apr 2007, he sadly passed away on 11 Sep 2007, in our arms at Robin House ( Children's Hospice).
James was born with a rare genetic condition called Epidermolysis Bullosa, he had the most severe form of EB and was fatal in infancy.
James skin was as fragile as butterfly wings, his skin broke at even the slightest touch, causing painful open blisters and wounds, the blistering was not limited to his skin, but also affected his inner body linings, such as his mouth and oesophagus. James was a very brave wee boy, he was a son we have always been proud of and it has been a privilege to be his parents. In loving memory of our son James Terrence Lynch ( Jim Jim ), we are going to do the Great Scottish Walk on 11 May 2008 in Glasgow, please support us by visiting our fundraising website www.justgiving.com/jim_jim, help us raise funds and profile of the charity by emailling this fundraising page to your friends,work colleagues, and family members, every £ helps people affected by EB and helps towards finding a cure! thank you very much!

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vio · 16/03/2008 17:59

please support us ladies! with your helps, we can make EB CURABLE!

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