Please help, I'm running low on life's zest and I don't know what do anymore.
Background....
My wife and I have a little girl with SMA type 1. She's two and she's beating the odds (thanks to a trial of Spinraza). While I am grateful that she is beating the odds, our lives are far from the norm. We are a hospital family. Our lives (especially my wifes), are controlled by the many appointments and special care that our daughter needs to live.
More Kids????
To me, our hands are full but my wife wants more kids - plural. As a compromise, she might be okay with one more but at this time I don't know if I can do one more. I love kids, but I also want my wife to be a wife. I.E. A wife vs a mom. It may seem like I am splitting hairs, but this is a serious issue for us. Normal kids take time, but I compare parenting a special needs kid to parenting on steroids! Everything takes more time, which leaves no time for us to foster and keep our flame alive.
Questions...
How do we do it? I'm torn, we have argued about this for too long. She wants kids now, I want a stronger relationship so we don't have a "band-aid child". In her words " I need to shit or get off the pot". I.E get on the having kid's train or start the separation proceedings.
In addition to the above, SMA is a genetic disease. There is a 25% chance that this happens again. I'm not sure I can handle two special needs kids. It's selfish, but I think that if we have two special needs kids I'll have to give up to much of who I am to help these sweet little babes live in this world.
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bkp014 · 11/12/2018 21:15
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