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Seriously, I cannot be only the 29th UK case of this in 30 Years!

(24 Posts)
notanumber Sat 11-Jul-09 20:56:48

Soooo.... After one tubal ectopic plus several miscarriages (and also my lovely DS), it seems that I may be presenting with......

An ectopic, with implanation occuring on my C-Section scar.

Apparantly it's all terribly exciting because there have been less than 30 cases of this since the late seventies.

Still only 6 weeks so the trans-vaginal scan isn't really showing much except this weirdness around my scar area. So It's not definite at the the moment (though I can tell that the dics are really hoping that it will be. I've never known them chase HCG tests so enthusiastically).

Surely I've earned some luck by now? I cannot believe that I'm actually hoping that it is just a normal ectopic. Or even - if I'm really lucky - just a plain MC.

If the docs are right about how rare this is then I doubt it, but has anyone had similar?

notanumber Sat 11-Jul-09 20:57:40

Freudian slip there with the old docs / dics typo blush !

OracleInaCoracle Sat 11-Jul-09 21:03:49

omg, have heard about this but am aware that its very rare. dont know what else i can say except my thoughts are with you all xx

Habbibu Sat 11-Jul-09 21:05:50

No experience, but sympathies with hoping for a normal m/c. I had a partial molar pregnancy after I'd also had a baby with anencephaly, and developed quite a black sense of humour to deal with it - yours sounds even more rare.

Hoping that it turns out to not be as "exciting" as it appears - sometimes the mundane, even in very sad situations, can be something to be wished for... And so sorry for your losses - how brutal and sad.

OracleInaCoracle Mon 13-Jul-09 18:00:11

any news?

Northernlurker Mon 13-Jul-09 19:08:36

Oh dear - well unfortunately even the rare stuff has to happen to somebody. I do hope it isn't this for you and that you get better luck soon. No question but that you deserve that!

ilovemydogandmrobama Mon 13-Jul-09 19:16:22

sad So sorry, but is there any chance that you could agree to being a case study in exchange for, I don't know, IVF or something that would increase your chances of having a healthy pregnancy to term?

notanumber Mon 13-Jul-09 22:01:06

No real news as yet.

The HCG levels are indicating ectopic but another scan was still fairly inconclusive though the (seven hundred) doctors in the room remained very excited about the "ghosting" round my scar. They're falling over themselves to scan me, I tell you. I was in those stirrups for about fifty minutes. It felt like a porno gone very very wrong.

I do get that they need the experience and stuff, but jokng aside, I'm actually a human being who is losing (another) baby....

[big fed up sigh emoticon]

Thanks for the support on here, I do appreciate it.

OracleInaCoracle Mon 13-Jul-09 22:12:31

oh sweet, it must be horrible! whats the plan? do they even have one? id have thought that the injection would be safest bet!

macherie Mon 13-Jul-09 22:18:07

So sorry to hear about this, you have enough to put up with without a crowd of doctors salivating over your misfortune.

BIL is a junior hospital doctor and the can be an insensitive twat, a common trait with doctors who see you as a collection of symptoms rather than a vunerable person having a dreadful experience.

My granny had an extremely rare heart condition and every time she went into hospital is was as if a siren call had gone out for juniors and med students. She was tolerant to a point, they have to learn after all, but when she'd had enough she made it clear to the consultant that she wasn't available to all comers.

Can your partner or a friend speak up for you if you are not up to it yourself. You deserve to be treated with respect no matter how fascinating they find your pregnancy.

Hope it works out for you.

piprabbit Mon 13-Jul-09 22:19:54

Doctors can be a funny lot - I remember my renal consultant practically falling over himself with excitement to tell me I had been diagnosed with Lupus (the results had been inconclusive for a time and he was thrilled to finally be proved right). I hope your lot discover a bit of compassion. Look after yourself.

hazeyjane Wed 15-Jul-09 20:49:37

Sorry to hear about what you are going through.

Like Habbibu, I had a molar pregnancy. Mine was persistent and I ended up on two different types of chemotherapy for 10 months.

I was prodded and probed by more doctors than I can think of! I remember at one scan a whole roomful of students coming to have a look. It was wierd having something that so many people took an excited interest in - they all looked so pleased about it, and TBH I sometimes forgot that it was a miscarriage amd that I was actually pretty ill.

I just had to keep reminding myself that with something rare it can only do other people good if dr's use you for knowledge. I have volunteered to have blood tests regularly so that I can be monitered, as there isn't a great deal known about the effects of a molar pregnancy + chemo treatment.

I really hope that things go ok for you. Good luck and thinking of you.

sunburntats Wed 15-Jul-09 20:55:00

dark humour is good therapy i think.

i tell people that my reoccurant mcs are just plain boring now as i seem to have them every other month!

People dont know how to take it!

any how, just wanted to say hello and feeling your distress hun, tis shoit.

nojustice Wed 15-Jul-09 22:54:10

sunburntats, i do the same. will say when people ask about #2 "well, we haven't had a mc for oooh 2m, so we're due another" feel bad for a nanosecond...

CarGirl Wed 15-Jul-09 22:57:12

on a positive note at least they're going to look after you well.........

Hope you are okay and my sympathies, bring on the dark humour if it helps keep you sane.

edam Wed 15-Jul-09 23:06:01

Rotten luck, notanumber, hope it's not actually as bad as the docs suspect. And that your luck turns very quickly indeed.

Don't forget you can just tell all the onlookers to piss off at any stage... I had to do this once in far less traumatic circumstances and the consultant suddenly switched from ooh, this is really interesting for my juniors mode to recognising me as a patient who, you know, needed a bit of privacy. Almost like she changed gear.

notanumber Fri 17-Jul-09 20:43:20

Thanks for all the support. DH just sprung me from hospital.

Definitely looks likes implantation on my scar, but the good news is that my HCG has dropped slightly, so they are using expectant management for now in the hope that it will resolve without the need for medical or surgical intervention.

On the down side, docs are v v v bad at putting drips in / taking bloods and I now have some track marks on the top of my left arm. Fantastic, I now look like Junkie Mum and everyone at playgroup will shun me. (Or ask me to hook them up, I suppose, depending on how sleep deprived they are and how close to the edge they have been pushed by ITNG).

Thank you all again for being such a lovely bunch of people. I don't know what I did before I had MN!

OracleInaCoracle Fri 17-Jul-09 23:38:45

well, i suppose thats something.

ITNG can push anyone to the limit wink


AitchTwoOh Fri 17-Jul-09 23:44:26

fingers crossed that the expectant management works out for you. my most heartfelt sympathies that another wee pregnancy hasn't made it for you, it's grim.
and you get a nurse to take bloods, you daftie, as any fule kno. smile

OracleInaCoracle Fri 17-Jul-09 23:46:27

lol aitch, every messed up blood test/drip attachment ive ever had was by a cons. one drip (for my ep) has actually scarred my.


AitchTwoOh Fri 17-Jul-09 23:51:25

it scarred your . ?

ouch. wink

OracleInaCoracle Fri 17-Jul-09 23:56:27

pmsl, no excuse, not even drinking! scarred my hand blush

Dozer Mon 03-Aug-09 21:56:48

So sorry about that!

Know what you mean about the scans, they chat away to you, partner and everyone else etc. etc. while they have a dildo inside you! Urgh.

I think I might have had something similar with my first miscarriage (have had three since a C-section in 2008). I had bleeding at 6 weeks and they were umming and ahing about whether it was an ectopic or uterine pregnancy (lots of blokes coming in and out), then decided it was probably on my scar and just to monitor and see what happened, lost it naturally. v.sad.

The worst though was when, in the middle of another scan to investigate the possible causes of the miscarriages I asked about whether the C-section scar could be the problem. The doctor, who is nice enough normally, said "oh no, if there was any problem it would hurt when I did this" and thrust the dildo thing around! We had to see the funny side though, it was so ridiculous.

"Carry on ultrasound".

biccymum Sat 03-Oct-09 19:18:24

I know this is an old thread but really had to post when I saw it,this is my first post so excuse any mistakes. I had an ectopic in my caesarian scar 5 years ago and wanted to tell you, you're not the only one. I have never talked to anyone else before who had this.
I found it very traumatic being told I was very rare and everyone saying it was 'interesting' when obviously I was devastated at losing the baby.
I had expectant management and serial scans and it did resolve completely on it's own even though there was quite a big area of damage, and I had a subsequent uneventful (although nervy!) pregnancy.
I really hope you are fine now and things are going ok.

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