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Life-limiting illness

Secondary bone cancer after 10yrs cancer free

2 replies

icebearforpresident · 08/03/2020 18:57

We got the news in Friday that my mum has bone cancer. After spending a week in hospital, initially admitted with high calcium levels in her blood and chasing various theories as to the cause of that bone cancer was confirmed in the evening when no one from oncology was still around. All the doctor who told us the news could tell us was that there are ‘multiple lesions’ on her spine & vertebrae.

She had breast cancer back and was given her 10year discharge last summer. Apparently with breast cancer a secondary cancer after so long is unusual but not unheard of. The prognosis for a secondary bone cancer is pretty bad by all accounts.

I have a 4 year old and a 6 year old. I’m weirdly calm about everything but the thought of having to tell them grandma might not get better is absolutely killing me (we’ve told them and at the moment they really aren’t phased though they are probably too young to understand).

Don’t really know why I’m posting, think I just need to ramble. Anyone any experience with this kind of thing?

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Minxmumma · 11/03/2020 08:31

So sorry you find your self here. It really is rubbish but there is lots of support and advice to be had.

My mum was diagnosed with secondary Mets last spring Bones, lungs and a few other random bits that I can't remember. She has been on hormone therapy and bone strengthening injections which have held everything in the bone stable. We are nearly a year in and whilst it sucks, her bone Mets haven't progressed. Hopefully you will get an oncology appointment soon and they will have some treatment options for her. Ask lots of questions, ask them again if you aren't sure.

I have 4 DC, 3 are adults practically and are coping really well all things considered, the other is 3 and there is simply no way to tell her Nana isn't going to get better, she just doesn't understand and that upsets me more often than I care to think.

Gentle hugs

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Mothersday2020 · 28/03/2020 13:22

Sending you love. My sis is in her 30s and has lived with bone mets for 5 years so there is hope and lots of different treatments now available. It must be such a hard time for you all xx

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