Help! I'm 52 and have just been diagnosed with motor neurone disease - it is such a shock. I am healthy, I was fit, I exercise, there is no family history. It's a bolt from the blue and it is so hard to take in. Intellectually I know it's just random - but it's just to hard to take in
We emigrated to Australia 6 years ago, I have a 13 year old daughter, am separated from my husband who has Aspergers and am freaking out that she will grow up without me to be there and support her.
The reality is that I don't know what my lifespan will be but average from diagnosis is 2-3 years. Only my legs are affected at the moment but eventually my whole body will be paralysed - how the hell can this happen to me? I will become more and more disabled and I don't want her to become my career when she should be out enjoying herself with friends.
I'm wondering how others have coped with these types of life events....I have told her that I will be disabled and end up in a wheelchair but haven't yet told her about my reduced life expectancy. I don't even know how to start that conversation with her.
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Life-limiting illness
Does anyone have experience of MND?
mashedswede · 09/02/2020 02:22
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