Worried about MS

[scared1989]

Hi

Just after some advice really wasn’t sure wether to post this in the mental health section as I do have health anxiety but here goes...

For about the last year I’d say I’ve been experiencing nerve pain in mainly my legs kind of like a burning pain sometimes a shooting pain mainly in my thighs sometimes the bottom of my legs it’s on and off but as of recent it is almost daily I also feel this shooting pain in my bum too and at the bottom of my spine but the burning sensations are mainly in the thighs.

Went to the GP he done bloods and I had low vit D so was given tablets to take.. this was a few months ago and it hasn’t got any better.

My left eye has now also been twitching every day for the 5 days I’ve read this can also be a symptom. I’ve been getting more than enough sleep so it can’t be that but I am a bit stressed atm I’m going through a break up and have been through a very difficult time with my ex partner since last summer.

I’m not experiencing any other or the symptoms I’ve read apart from the nerve pain and now the eye.. most of the sites say the pain is more pins and needles and numbness and this isn’t what I have but I am still worried.

I’m 29 and also read thats the age MS is likely to be diagnosed.

Just wondering is anyone has a similar experience ?

[scared1989]

Update .. I have now been to the GP who said he doesn’t think it is MS as the pain is generally wide spread and not isolated to the legs and I don’t have blurred vision or any Inconteniemce but he’s ordered auto immune bloods profile.. I am very scared

[imabusybee]

Holding your hand OP. I am awaiting an appointment with neurology due to suspected MS.. I'm 30. It's bloody terrifying but my symptoms have been very sudden and difficult to deal with so I just want to know what I'm dealing with at this point.
My symptoms are tingling in fingers (carpal tunnel ruled out), extreme fatigue (I have a CFS/ME diagnosis) and a terrible short term memory which has come on in the last few months

Hopefully its nothing for either of us but for the stress until you get an answer.

[scared1989]

@imabusybee thank you to you too..

It’s worse that I suffer from health anxiety as I can become obsessive about these things but the shooting pain /burning is defiantly there however that is my only symptom.

Hopefully it is nothing and we are both fine

Did your GP test auto immune bloods for you ?

Xx

[imabusybee]

@scared1989 yes bloods came back all ok (I was hoping there would be an explanation!)
It must be so hard having your health anxiety too, a friend of mine has it and it is so hard to deal with for her so I really sympathise.
Fingers crossed for both of us x

[scared1989]

@imabusybee well your bloods being okay is a good sign although I know it’s probably
Frustrating not knowing what’s going on.

Fingers crossed for you x

[NoBaggyPants]

Have you seen a physio?

[scared1989]

@nobaggypants not yet but I’ve been referred to one today so hopefully it helps

[IceBearRocks]

Both of you have symptoms of low vit d! DH has MS DX at 29 but is still very healthy... If he gets really exhausted his legs get tired!

[Lau247]

@icebearocks I do have low vit D was told by the doctor it was extremely low I am taking a spray vitamin now. My blood results were all normal apart from that

[Bambini83]

I know this is an old thread but wondered if either of you ever got a diagnosis? I’m experiencing similar symptoms but the GP is being useless. Thanks!

[RedCouch]

Hi Bambini

I had similar symptoms to the op on this thread, and after 8 months of tests etc got diagnosed with MS last year. It's honestly not as bad as you think, there's excellent drugs etc now that can keep it at bay.

Have you had any consultation or tests yet? What is your symptoms?

[r1911]

@RedCouch hi, i know this is an old thread but if you see this message please can you share what youre symptoms were and what tests you had to get diagnosed? Im also some worrying symptoms 😞 waiting for referrals and tests is the hardest

[RichmondMumof2]

Diagnosis generally requires a MRI of the brain and spinal chord to look for evidence of lesions and a lumbar puncture to support which looks for indications of inflammation in the cerebrospinal fluid.

The prospect of having MS is terrifying. As someone recently diagnosed I have to say life goes on and treatment is a lot more targeted these days.

[r1911]

@RichmondMumof2 sorry i didnt realise you had replied - thank you so much!

Did you have an mri to get the diagnosis? What parts did you/the neuro request?

Ive read that treatment options are now much better, thank you for sharing.

[RichmondMumof2]

Yes. MRI is required. Note having had a few MRIs now they are a doddle. Get comfortable and warm before it starts. It doesn't hurt, just a bit noisy and claustrophobic. Lasts 20 mins for a brain scan without indicator. Up to 3 hours for full brain and spine repeated with indicator.

The neurologist has given me the diagnosis as I have multiple lesions identified at different times.

They won't give me treatments as I'm not suffering acute relapses since one 10 years ago.

How are you doing?

[RichmondMumof2]

Note I had full brain and spine for the first.

Now they typically just do the brain to monitor.

[clairethewitch70]

I have the white matter patches on an mri brain scan. Was booked in for a lumbar puncture which failed due to spinal stenosis, degenerative discs and spinal compression but they won’t diagnose without a positive lumbar puncture so not sure what will happen now