6 weeks ago after months of being unwell and struggling to breathe I was finally diagnosed with dilated cardiomyopathy and very severe heart failure. My heart is functioning at 15% of it’s capacity. I am 42 years old.
I have been put on a cocktail of drugs and given advice for how to spot if things are getting worse but it has been made quite clear that I will never get better.
I am devastated and very frightened about how much future I have and what exactly that future has to hold. I’ve tried talking to DH about how I feel but he just keeps reassuring me that I’ll be ok. I suspect he’s just as frightened as me.
I have 2 teenage boys. They know a little of what’s going on but not how serious it is.
What I really need is not reassuring but listening to and understanding. Help!
Please or to access all these features
Please
or
to access all these features
Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.
Life-limiting illness
Severe heart failure
4 replies
AEJS · 19/10/2018 17:29
OP posts:
Please create an account
To comment on this thread you need to create a Mumsnet account.