I carry a mutation that means my sons may go blind does anyone know how you get into the world of clinical trials and help from doctors. From what I've read there is good progress in treatment but you must be early and monitored. But who would monitor you? My sons carry the LHON gene but I've no idea who to talk to?
Anyone who can help let me know
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Life-limiting illness
Genetic blindness
6 replies
girlingerrupting · 21/12/2017 17:12
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