So, yesterday DH was told that he has suspected pulmonary hypertension. He has 4 more hospital appointments over the next month where they will run tests to fully diagnose and decide upon a course of treatment, so by this time next month we should know what we're up against.
I don't think I've ever been so terrified in my life. I know I shouldn't Google, but I feel I need to know what we're potentially dealing with. It seems that even the best case scenario doesn't look great. I'm scared for DH that he may have to undergo some horrible treatments, I'm scared for DS that his daddy may not be able to do the things other daddys do, and I'm scared that so much could change for us. It seems so unfair.
We've not talked about it, but I know at some point we will have to acknowledge that there are some big changes for us around the corner. I don't think DH really wants to admit there is anything wrong with him until he has something definitive in black and white.
Im not sure what I hope to achieve by posting. I guess I need to offload. I don't really want to share with anyone in RL yet until DH is ready to talk openly.
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Life-limiting illness
Pulmonary Hypertension - scared...
20 replies
nancerama · 31/05/2012 09:55
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