DH has another bad chest - which is quite worrying

[Katymac]

As he is 11 days into a 14 day course of anti-biotics

I guess I phone Papworth again tomorrow

I am feeling a bit down again

[mumblecrumble]

SOrry you are down. Does he have a history then?

[CarGirl]

[Katymac]

Yep

& tbh I am so fed up

It was better before Papworth at least then he was just down all the time, now we have peaks; which make the troughs so much worse

[Katymac]

Uh-oh he has got significantly worse during the evening

Oh bugger

[IkeaHighchair]

Are you alright Katy? How is he?

Do you think you need to get him seen tonight. If he is getting worse on ABs this is not good (sorry).

[Katymac]

I kinda worked that out

He isn't awful - but he should be getting better not worse

He isn't as bad as it was on Thursday when he had the AB diagnosed but he has slipped about 4 or 5 days back imo

I'm not sure about taking him in tbh as we are about 100 miles from Papworth & I guess my local hospital wouldn't do much

[IkeaHighchair]

Sorry - didn't mean to be patronising. I realise that you can't get to Papworth (it is PerfectPrefect BTW) - but I didn't know if you were trying to say that you needed "help" tonight IYSWIM - in which case you shouldn't rule out your local hospital. They can certainly make him more comofrtable if he is struggling - irrespective of his history.

[Katymac]

If he gets as bad as Thursday I will ring an ambulance - I won't have a choice tbh

But he isn't that bad yet

I didn't mean to snap/be rude I guess I am just worried...sorry

[IkeaHighchair]

No - I realise that Katy. I know you are stressed about this - don't worry about it. I just wasn't sure that you recognise me (not sure if you recognise me without the Ikea outfit on TBH).

I am frustrated for you. Sounds if you need something drastic to get him back on track...I don't know what to suggest though.

How is DD coping with it? I know that she was very concerned a couple of weeks ago when he was "first" ill with this bout.

[Katymac]

She has broken her little toe & is enjoying that atm so Daddy is down on the list of priorities which bizarrely I am quite pleased about

I do think I need to sort something out for her - fortunately she does have lots on outside the house. But her dancing depends upon him - I can't take that over without a major job change.

DH is sat up as he is uncomfy lying down

[Katymac]

Off to bed

See you tomorrow & fingers crossed he brightens up a bit

[Katymac]

He is being admitted to Papworth later

Catch you when I get back

[IkeaHighchair]

Katy.

Sorry I had gone to bed before you posted last night.

He is hopefully in the right place to get sorted though.

Let us know how he is.

[Katymac]

He is having bloods/liver/chest tests tomorrow then is probably going on 3 different ABs for up to 18m

[IkeaHighchair]

Any prognosis on how long he will be in Papworth?

[Katymac]

If they treat him for Mycobacterium - less
If they treat him for a chest infection 10-14 days

[Katymac]

Well it's been a great day

Dh stuck in Papworth - me running round like a headless chicken & nothing happening to DH

How much does it cost to keep someone in hospital for a day?

[IkeaHighchair]

Have they done nothing ?

I really wish there was something I could do....it just feels like words are not enough - but short of coming dwon to Papworth and holding his Drs hostage until they actually do something to help him in both teh long term and short term I am all out of ideas.

[Katymac]

Well they took some blood mid morning & he phoned 5 mins ago to say they were putting a line in (but the IV might not start until tomorrow)

I have contacted PALS (& left a message on the ansaphone) saying as I live so far away & am busy earning our keep, could someone please phone me & keep me up-to-date with what is happening;as when I ring the ward no-one can understand the questions I am asking.

I don't know if that is what PALS is for but it would help me if once a day they could either phone & explain what is happening or let me ring them & they can tell me what is happening

[IpeeFreely]

how is dd today?

[IkeaHighchair]

The simple things like you describe can make so much difference to the family of a patient like your DH.

i think that is exactly what PALS is there for (well IMO anyway).

[Katymac]

Fingers crossed that they get in touch tomorrow (I hope I left my number I was a bit frustrated at that moment)

I guess PALS are a 9-5 jobbie (or maybe even a 10-4 )

[Katymac]

Sorry DD is having total meltdown upstairs in my bed

I don't really know what to do with her

[IkeaHighchair]

IIRC she is at an age where she understands enough to make her worry but not enough to reassure her?

I really really really don't knwo what to suggest.

[Katymac]

She's 11

I don't know what to do either