I was diagnosed by the neurologist in March with a condition called migralepsy. Basically migraines but I get seizures with them . I'm taking 100mg topiramate a day which hasn't seemed to help yet as I'm having seizures nearly everyday still .
I know they are coming an hour or 2 before hand I get like a drunk wobbly feel, light headed so I know I need to get home or somewhere I can sit down for awhile.
The seizure takes over my head like pins and needles tingling all over my face specially my jaw and lips makes my face feel paralysed. (As if Iv been injected by the dentist)
My heart palpitates and I get this sudden tiredness and I'm fighting to stay awake I use to be out for 2 hours at a time but since my medication I'm only sleeping afterwards for 30mins an hour tops .
Within my seizure my heart rate drops down to 43beats per minute. It's really scary .
I google to find out about this and I find so little about it . I don't know anyone who suffers with my type of seizures . Be nice to know if any one has any experience .
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General health
I suffer with unusual seizures, would like to know if anyone else does?
3 replies
kellysmadhousewonder · 09/04/2020 22:47
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